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Despite lifelong battle with rare skin cancer, woman's spirit ...  -  Mar 24, 2008
Dallas Morning News,Wendy has xeroderma pigmentosum, a genetic disorder that leaves the body unable to repair the everyday damage of ultraviolet light. "We were outdoor people.

Significant birthday  -  Mar 10, 2008
El Habanero,Vasallo Gomez from Quivican, who had been diagnosed since he was 11 with Xeroderma Pigmentosum that does not allow expose himself to the sunâ€™s rays.

We're all mums to kids in a million  -  Feb 26, 2008
Mirror.co.uk,...and husband Steve, 52, set up a support group for those affected by the skin condition Xeroderma Pigmentosum (XP). Their son Alex, 13, is a sufferer.

Interview with Caren Mahar, director of the Xeroderma Pigmentosum ...  -  Feb 7, 2008
Blogcritics.org,When Caren and Dan Mahar of New York learned their daughter Katie had been afflicted with Xeroderma Pigmentosum, they didn't know where to turn.

Brad Paisley and Kimberly Williams-Paisley Help Support Camp ...  -  Feb 8, 2008
Emediawire (press release),Founded in 1995 by the parents of a child with the rare disorder xeroderma pigmentosum, whose main symptoms include severe reactions to sunlight,

Probing A DNA Repair Enzyme  -  Feb 18, 2008
Science Daily (press release)Mutations in the human members of this helicase family impede DNA repair and may contribute to breast cancer, Fanconi Anemia and Xeroderma pigmentosum.

Camp Helps Children With Rare Disease  -  Dec 7, 2007
Blogcritics.org,Children with the disease Xeroderma Pigmentosum (XP) cannot be exposed to sunlight without suffering severe skin damage. Just simply going outside,

profile: riley mccoy lives with xeroderma pigmentosum.  -  Nov 19, 2007
OCRegister,...with her friends. mccoy is unlike most other children in that she is one of 150 children in the united states who has xeroderma pigmentosum (xp),

fundraiser for ladera ranch girl draws huge turnout  -  Nov 14, 2007
OCRegister,10 for the walk by the light of the moon, an event designed to raise funds for xeroderma pigmentosum (xp), a disease in which a person's body does not have

coming out of the shadows  -  Nov 12, 2007
Daily Breeze,...the daily breeze profiled the crains shortly after emma's diagnosis two years ago with a disorder called xeroderma pigmentosum, or xp, which is so rare that

orange county communities come together to help raise funds for ...  -  Nov 6, 2007
Business Wire (press release),...calif. to raise funds to help cure xeroderma pigmentosum (xp) disease. this devastating disease causes severe 3 rd degree burns on the skin if exposed

Despite rare disease, 7-year-old perseveres  -  Oct 16, 2007
OCRegister,A few months later and after much testing, Riley was diagnosed with Xeroderma Pigmentosum (XP), a rare genetic affliction that causes severe burns to her

Camp Sundown kids to visit Air National Guard Base Friday  -  Oct 2, 2007
Times Herald-Record,The Xeroderma Pigmentosum Society is dedicated to helping XP families, patients and those afflicted with similar life-threatening, sun-sensitivity disorders

Kimberly Williams-Paisley's Film Educates About Rare Disease  -  Sep 21, 2007
PR Web (press release),The Xeroderma Pigmentosum Society, which supports XP Patients worldwide, helped with the production. The XP Society runs a camp for children with XP called

Allure Magazine Names Remergentï¼ˆRï¼‰ DNA Repair Formula Best of Beauty  -  Sep 25, 2007
é‡‘èž?ç•Œ,The drug is now being tested in patients with high skin cancer risk, patients with organ transplants and those with the genetic disease xeroderma

Dimericine(R) Receives FDA Fast Track Designation for Treatment Of ...  -  Sep 5, 2007
PR Newswire (press release),Xeroderma pigmentosum, or XP, is a rare genetic disorder that blocks the body's natural ability to repair DNA damage caused by ultraviolet (UV) light.

Fast Track Status Granted for Photosensitivity Treatment  -  Sep 5, 2007
Facts and Comparisons,...status to AGI Dermatics for Dimericine (T4N5) for the treatment of solar and ultraviolet photosensitivity in patients with xeroderma pigmentosum (XP).

Short Film Shade Educates Audiences About Rare Disease  -  Aug 26, 2007
Blogcritics.org,Director Kimberly Williams-Paisley got the idea for Shade by watching a CNN report about the disease xeroderma pigmentosum (XP).

Off to a healthy start at school  -  Aug 22, 2007
Sacramento Bee,By Danielle McNamara - Bee Staff Writer Sacramento Bee/Autumn Cruz Five-year-old Aimee Milota has a very rare genetic condition, xeroderma pigmentosum,

Special windows help girl go to school like everyone else  -  Aug 14, 2007
Checkbiotech.org (press release),Milota suffers from a rare genetic disorder known as Xeroderma Pigmentosum or XP that does not allow her skin to repair itself from sun damage.

New Mechanism In The Development Of Severe Inherited Disease ...  -  Aug 31, 2007
Science Daily (press release)These disorders also include, for example, Xeroderma pigmentosum and a type of hereditary bowel cancer. However, symptoms of Cockayne Syndrome,

Fixit: Fluorescent lights give off only small amount of UV radiation  -  Aug 27, 2007
Minneapolis Star Tribune (subscription),Some individuals are genetically very susceptible to ultraviolet light, however, and get skin cancers at a very young age (xeroderma pigmentosum).

Unbearable lightness of being  -  Aug 17, 2007
Scotsman,The New York camp is run by the Xeroderma Pigmentosum Society and most of its guests, and Ben's new friends, have XP, a related and rare genetic defect

Study suggests harmful properties of aluminium in sunscreens  -  Aug 14, 2007
CosmeticsDesign-Europe.com,Marta VanBeek, disputed such claims pointing to the fact that groups suffering from skin conditions such a lupus or xeroderma pigmentosa, that have been

Setting the sunscreen story straight  -  Aug 12, 2007
SpiritIndia,..."There are groups of people with inherited disorders like lupus or xeroderma pigmentosa who have to use large amounts of sunscreen all the time," she said.

105th Airlift Wing will host 'open hangar'  -  Jul 21, 2007
Poughkeepsie Journal,The event is taking place for individuals from Camp Sundown, which supports children and adults with Xeroderma Pigmentosum (XP), a rare disease which

Too young to grow old  -  Aug 3, 2007
Sun.Star,Unlike most other "accelerated aging diseases" (such as Werner's syndrome, Cockayne's syndrome or xeroderma pigmentosum), progeria is not caused by

Turning sun protection inside out  -  Jul 16, 2007
SouthCoastToday.com,The company is testing the product, which would be available only by prescription, in people with a condition called xeroderma pigmentosum, a rare genetic

Two Families Fight Against Rare Diseases  -  Jul 12, 2007
Blogcritics.org,When Caren and Dan Mahar of New York learned their daughter Katie had been afflicted with xeroderma pigmentosum, they didn't know where to turn.

Enduring Heat  -  Jun 26, 2007
Jackson Clarion Ledger,Watts warns that people with a fever, sickle cell trait and a few rare genetic syndromes such as basal cell nevus syndrome or xeroderma pigmentosum,

Turning Sun Protection Inside Out  -  Jun 12, 2007
Jackson Hole Star-Tribune,The company is testing the product, which would be available only by prescription, in people with a condition called xeroderma pigmentosum, a rare genetic

The Wright way for XP children  -  Feb 17, 2007
Bucks Free Press,The excited youngsters suffer from XP - Xeroderma Pigmentosa - a rare condition that makes them dangerously sensitive to the sun's ultraviolet rays.

Death by sun  -  Jan 7, 2007
New Straits Times,WAN Lao Yang is a nine-year-old girl from rural China suffering from Xeroderma pigmentosum, or XP, a rare genetic disorder in which UV light damages her

Support group gets BFPâ€™s Christmas card funds  -  Dec 28, 2006
Buckinhamshire Free Press,The group is run by Sandra Webb, whose 12-year-old son Alex suffers from Xeroderma Pigmentosum (XP), a rare condition which means he cannot go out in

Update On Craniofacial Cancers  -  Jan 17, 2007
Medical News Today (press release),...complications of xeroderma pigmentosum, a condition that makes the skin highly sensitive to the damaging effects of ultraviolet radiation in sunlight.

Support group gets BFPâ€™s Christmas card funds  -  28 Dec 2006
Bucks Free Press,The group is run by Sandra Webb, whose 12-year-old son Alex suffers from Xeroderma Pigmentosum (XP), a rare condition which means he cannot go out in

Aging Driven By Buildup Of Damaged DNA In Cells  -  Dec 24, 2006
Medical News Today (press release),Defects in one DNA repair mechanism, nucleotide excision repair (NER), causes xeroderma pigmentosum, a rare disease in which people have a 2000-fold

DNA damage repair defect unifies theories of aging  -  Dec 20, 2006
Scientist,..."If you knock out other genes required for nucleotide excision repair to model the human disease xeroderma pigmentosum, you don't get accelerated aging,

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