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A special space for Hailee  -  Jan 25, 2008
Shelbyville Times-Gazette,Hailee suffers from an extremely rare genetic disorder called Sanfilippo Syndrome: Mucopolysaccharidosis (MPS), an incurable disease that severely limits

Ben's Dream  -  Dec 21, 2007
BostonNOW,11-year-old Benjamin Siedman has been diagnosed with Sanfilippo Syndrome, a rare & fatal inherited genetic disorder. Ben and thousands of children afflicted

Waldron students raise funds for county hospice  -  Dec 22, 2007
Shelbyville News,He was diagnosed with Sanfilippo syndrome two days before Christmas in 2005. Ash's mother, Christina, said the hospice provided pain management services for

local band opens at union coffeehouse  -  Nov 22, 2007
Hanson, Whitman & East Bridgewater Express,...emily and elizabeth furlani from mashpee, who have been diagnosed with a rare genetic degenerative disease called sanfilippo syndrome. their parents

'leeew' bulldozes his way into ihsaa hall of fame  -  Nov 16, 2007
Waterloo Cedar Falls Courier,...lucas, called sanfilippo syndrome. two other northeast iowans will be inducted tonight during the halftime of the class 4a state title game.

THS students continue media winning tradition  -  Sep 20, 2007
McDuffie Mirror,Originally a project for her Health Occupations 2 class, the book explains from a child's point of view a rare, genetic disease called Sanfilippo's Syndrome

Former Iowa football player seeks cure for  -  Sep 5, 2007
Checkbiotech.org (press release),Their 10 year old son Lucas has Sanfilippo Syndrome, also known as MPS. It's a progressive genetic disease for which there's no known cure.

In the loop: Fans of Hawkeyes, Cyclones can purchase vintage helmets  -  Aug 26, 2007
DesMoinesRegister.com,Former Iowa fullback Lew Montgomery and his wife, Stacey, are organizing a fund-raising walk to raise money for medical research into Sanfilippo Syndrome,

Back in time for a round  -  Aug 19, 2007
Colorado Springs Gazette,Their son Douglas died in 2003 at age 3 from Sanfilippo syndrome, a rare degenerative disorder that slowly assaults the organs. Their other son, Cameron, 5,

Sly Syndrome: Delivering Medicine To Fight Rare Genetic Disorder  -  Jul 26, 2007
Science Daily (press release)The research was funded by the National Institutes of Health, The Sanfilippo Syndrome Medical Research Foundation and VA Merit Review.

Little brother's cord blood helps girl with rare genetic disorder  -  Jun 28, 2007
AZ Central.com,In September 2004, Lauren, then 3 years old, was diagnosed with Sanfilippo Syndrome. Two months after the diagnosis, doctors at University of Arizona used

From here to eternity  -  Apr 14, 2007
Scotsman,Death is her chance to be with her two teenage daughters, victims of a rare genetic disorder, Sanfilippo syndrome. She seizes courage; it whispers still

Playing a sick child on TV is not for the faint of heart  -  Apr 24, 2007
Chicago Daily Herald,The condition known as Sanfilippo syndrome is rare and potentially fatal, and Anne Henry's daughter Jillian had to convincingly demonstrate that she had it.

Student-athletes get green for Kirby  -  Feb 20, 2007
Marquette Tribune,Kirby's parents founded the Children's Medical Research Foundation to fund research on Sanfilippo Syndrome and other neurogenetic disorders.

Shire plc: On Time Execution of Operating Plan Delivers Strong ...  -  Feb 20, 2007
MSN MoneyShire Human Genetic Therapies (HGT) - Three projects advanced to pre-clinical development; namely enzyme replacement therapies for Sanfilippo syndrome

SICK KIDS BETRAYED ..BY THEIR POSTCODE  -  Dec 2, 2006
Sunday People,Faye. The 12-year-old suffers from rare Sanfilippo Syndrome, which has left her unable to walk or talk and in need of constant care. ...

Health Watch  -  Nov 20, 2006
Organiser,...wih Excess Blasts (RAEB/ RAEB-T), Refractory Anaemia w/ Ringed Sideroblasts (RARS), Renal Cell Carcinoma, Reticular Dysgenesis, Sanfilippo Syndrome (MPS-III ...

SICK KIDS BETRAYED ..BY THEIR POSTCODE  -  Dec 2, 2006
Sunday People,Faye. The 12-year-old suffers from rare Sanfilippo Syndrome, which has left her unable to walk or talk and in need of constant care. ...

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