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An affordable peek at your genetic parts - 25 Mar 2008
Toronto Star,A. Avey: It could be something goofy – 10 per cent of the population that abhors cucumbers – to people with rare diseases. If we had enough in the database
High STD rate in teenage females illustrates need for screening - 25 Mar 2008
Great Falls Tribune,Doctors never mass screen the public for rare diseases. The likelihood of finding a rare illness is not cost effective. Sometimes millions of dollars are
Scientists Launch First Comprehensive Database of Human Oral ... - 25 Mar 2008
National Institutes of Health (press release)...supporting basic, clinical and translational medical research, and it investigates the causes, treatments, and cures for both common and rare diseases.
VH1 and Sundance Channel to Air Original Four-Part Documentary ... - 25 Mar 2008
PR Newswire (press release),In 1981 and 1982, newspapers and magazines publish the first reports of a mysterious outbreak of two rare diseases in homosexual men.
Microfluidic Technology Offers The Potential to Accelerate and ... - 25 Mar 2008
Business Weekly,When studying DNA to understand rare diseases there may be many processing steps in order to isolate a certain gene and having a repeatable and consistent
High Prices for Medications for Rare Diseases Raise Concerns for ... - 25 Mar 2008
Kaiser network.org,The "extraordinarily high prices of some drugs used to treat ultrarare diseases raise troubling questions for the American health care system" because,
R&D Spending by US Biopharmaceutical Companies Reaches Record ... - 25 Mar 2008
PR Newswire (press release),The current pipeline includes more than 600 medicines to treat cancer, over 300 specific to rare diseases and more than 275 medicines for heart disease and
Updates in the Management of Myelodysplastic Syndromes - 25 Mar 2008
Cancer Consultants,16 In this Phase I, dose escalating trial of the Rare Diseases Network: Bone Marrow failure consortium, lenalidomide was dose escalated from 5mg daily for
Pick-me-up urgently needed - 25 Mar 2008
Insurance News Net (press release),...be jointly financed by the new health insurance funds, and which would be the source of funding expensive and innovative treatments for rare diseases.
Celgene wins orphan drug status for lung cancer treatment - 25 Mar 2008
The Star-Ledger - NJ.com,The orphan drug designation is designed to give pharmaceutical companies an incentive to develop therapies for rare diseases, typically those that result in
VIDEO from Medialink and Shire plc: Rare Diseases Must Be Top of ... - Feb 29, 2008
FOXBusinessCollectively, rare diseases aren't rare. Rare diseases are defined as those that affect less than 5 in 10000 people, yet there are approximately 7000 rare
FDA OKs Regeneron Drug for Rare Diseases - Feb 27, 2008
CNNMoney.comNEW YORK (Associated Press) - Regulators on Wednesday approved a new drug from Regeneron Pharmaceuticals to treat two rare inflammatory disorders.
Public Consultation On Rare Diseases Yields More Than 600 ... - Mar 8, 2008
Medical News Today (press release),The announcement was made at the first Public Hearing on Rare Diseases ever to be held at the European Parliament, which took place in Brussels on March 4th
The 1st European Day on Rare Diseases was celebrated on 29 ... - Mar 3, 2008
cybermed.it,29 February, was chosen to celebrate the First European Awareness Day on Rare Diseases. This “rare� date was selected as an appropriate day to recognise the
EU focuses attention on rare diseases - Mar 4, 2008
EUPolitix.com,Member states have been urged to show "more commitment" in tackling the issue of rare diseases. At a public hearing in parliament on Tuesday,
Irish healthcare group calls for new Euro agency for rare diseases - Feb 29, 2008
Irish Medical News,Irish platform group for patient organisations and medical charities IPPOSI has called for a new European agency for rare diseases. The Irish Platform for
Children's Warns Quebec Falling Behind on Rare Diseases - Feb 29, 2008
CJAD,The Montreal Children's Hospital has chosen this rare Leap-Day to draw attention to rare-diseases. There are about 8-thousand known rare diseases in the
Orphans not working - Mar 20, 2008
Irish Medical Times,Irish patients with rare diseases have limited access to life-saving new treatments that have come onto the market since introduction of the EU’s Orphan
Rare diseases focus of awareness on Feb. 29 - Feb 29, 2008
Checkbiotech.org (press release),Linda says she hopes International Rare Disease Day will create "enough awareness of all rare diseases, that the government will step up and say,
Live Webcast Of HIV Vaccine Summit - Mar 24, 2008
Medical News Today (press release),...supporting basic, clinical and translational medical research, and it investigates the causes, treatments and cures for both common and rare diseases.
Deutsche Telekom supports launch of ACHSE info portal - Mar 4, 2008
Telecom Paper (subscription),Around four million people in Germany suffer from rare diseases that range from AADC deficiency to Naegeli syndrome and cerebral dysgenesis.
Treanda Treats Rare Cancer - Mar 20, 2008
U.S. News & World Report,...treatment was granted orphan drug status by the FDA, which offers companies exclusive marketing rights in return for drugs developed for rare diseases.
February 29th Is The First Rare Disease Day - Feb 28, 2008
Medical News Today (press release),In most European countries and in Canada, people concerned by rare diseases will be writing to their local representatives, holding press conferences,
'Leapling' springs for Feb. 29 bash - Feb 28, 2008
Toronto Star,Aimed at raising awareness and money, the second annual Rare Diseases Day will be Feb. 29, in 2012. Organizers say it makes sense to raise awareness about
Industry Wants EU Incentives for Orphan Devices, Diagnostics - Mar 12, 2008
FDA news (subscription),The European Commission should offer incentives for research on medical devices for rare diseases similar to the ones it provides for orphan medicines,
The Portail Québécois des Maladies Génétiques Orphelines (PQMGO ... - Mar 1, 2008
McGill University Health Center,Mediterranean fever, Cat's Eyes disease, Charcot-Marie-Tooth disease - these are just a few of some 8000 known rare diseases. It is estimated that up to 10%
MP hears from rare disease sufferers - Mar 1, 2008
Hereford Times,HEREFORD MP Paul Keetch has been talking to sufferers of rare diseases to try and meet their needs better. More than 150 visited Westminster on Tuesday
A Rare Day For Rare Disease - 29th February Is Celebrated As First ... - Feb 29, 2008
Medical News Today (press release),Although the UK does have specialist commissioning for some rare diseases it is not accessible by all and patients with rare conditions are calling for
MAP4343 receives orphan drug status - Mar 18, 2008
Checkbiotech.org (press release),The orphan drug status granted by the EMEA facilitates the development of products designed to treat rare diseases, which would not otherwise be profitable
RareShare Announces New Social Hub for Rare Medical Disorders - Mar 3, 2008
PR Web (press release),In the United States there are as many as 1500 diseases that qualify for orphan/rare diseases status and an estimated 5000 to 8000 diseases qualifying in
The Portail Québécois des Maladies Génétiques Orphelines (PQMGO ... - Feb 27, 2008
McGill University Health Center,They are rare diseases. Worldwide there are approximately 8000 known rare diseases. An estimated 10% of Canadians have a rare disease or about 700000 Quebec
Shining a spotlight on rare disorders - Mar 9, 2008
Irish Independent,...and there is a low awareness of these conditions. An awareness day was recently organised by the European Organisation for Rare Diseases (EURORDIS).
Archemix Announces Initiation of Phase 2 Trial for Aptamer Product ... - Mar 17, 2008
Business Wire (press release),Focusing on rare diseases represent a strategic opportunity because there are often few or no approved therapies, a high unmet medical need,
The face of orphan illnesses - Feb 29, 2008
Montreal Gazette,It's one of nearly 8000 rare diseases affecting 10 per cent of the population including a significant number of Quebec adults and children.
Managing Director of Samaritan's European Operations Invited to ... - Feb 28, 2008
Primenewswire (press release),Mrs. Marianna Lamprou, President of Greek Alliance of Rare Diseases * Mr. Vasilios Kontozamanis, President of EOF (National Organization of Medicines) * Mr.
Health Advocates Deliver a Dose of Knowledge - Mar 23, 2008
Workforce Management,...want to improve employees’ ability to navigate a maze of medical care options and questions about insurance reimbursement coverage for rare diseases.
Form can reveal heart problems - Mar 17, 2008
Atlanta Journal Constitution,Many of the rare diseases that lead to sudden cardiac death are in fact genetic or familial and therefore further stress the need to identify even a first
Former Biotech CEO Indicted on Fraud Charges - Mar 19, 2008
Wall Street JournalThe drug was approved only for two extremely rare diseases. If all of the people in the country with those diseases took the drug, its sales would have been
Drugmaker too pushy on rare disease treatment? - Mar 17, 2008
FierceHealthcare,This situation highlights the Catch-22 nature of rare diseases and the orphan drugs that treat them. Cerezyme is the only FDA-approved treatment for Gaucher
Biotech leader charged with fraud - Mar 18, 2008
San Francisco Chronicle,Actimmune is approved for two rare diseases afflicting children, but the Food and Drug Administration never approved it for idiopathic pulmonary fibrosis.
Arcalyst Treats Rare Inflammatory Disorders - Feb 29, 2008
Forbes,...orphan-drug program, which gives companies seven years of exclusive marketing rights in return for developing treatments for rare diseases, the AP reported.
FDA Clears Cephalon Chemotherapy Drug - Mar 20, 2008
Houston Chronicle,FDA approved Treanda under the orphan drug program, which awards market exclusivity to companies that develop drugs for rare diseases.
From Africa to the United States: How one doctor watched the AIDS ... - Mar 11, 2008
Daily - University of Washington,Rare diseases, such as Kaposi’s sarcoma (KS), a tumor that used to only be found in older Mediterranean men, started showing up in young American men in
140000 have rare disorders - Feb 28, 2008
Irish Health,The awareness day has been organised by the European Organisation for Rare Diseases (EURORDIS), which represents 300 organisations in 34 countries.
Drug Maker Stays Close to Doctors and Patients - Mar 15, 2008
New York Times,Genzyme’s seven years of monopoly under the Orphan Drug Act, a federal law intended to encourage companies to develop medicines for rare diseases,
Fabry sufferers, others with rare conditions mark international ... - Feb 29, 2008
ChronicleHerald.ca,People with Fabry and other rare diseases plan to lobby members of Parliament today to create a "Chance for Life Fund," equivalent to two per cent of the
Foundations Pumping Cash Into Research on Diseases - Mar 2, 2008
San Diego Business Journal,By HEATHER CHAMBERS Biotechnology firms have typically shied away from developing treatments for rare diseases because the drugs haven’t commanded high
Gene Therapy Could Save Kids From A Lifetime Of Eating Cornstarch - Mar 12, 2008
Science Daily (press release)..."There are not a lot of companies developing treatments for rare diseases," he added. GSD-Ia occurs in about one of every 100000 births in the US Duke is
Cambridge biotech firms departing city for suburbs - Mar 1, 2008
Boston Globe,Genzyme, which mainly develops expensive drugs to treat rare diseases, has had a presence in Framingham since it bought a small biotech company there in
Download House MD Episodes Free - Find Out How You Can Download ... - Feb 27, 2008
American Chronicle,I also love how education the show can be, since it portrays characters with rare diseases that are hard to diagnose.
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