|
This page contains recent news articles, when available, and an overview of
but does not offer medical advice. You should contact your physician with regard to any health issues or concerns.
Background information on
Clinuvel granted orphan drug status - Mar 11, 2008
Sydney Morning Herald,Clinuvel said on Wednesday it had been granted orphan medicinal product designations by the EMEA for erythropoietic porphyria (EPP) and congenital
Suntan coming soon in a syringe near you - Mar 12, 2008
The Age,At this stage, the drug is being developed as a remedy for erythropoietic porphyria, a genetic disease characterised by severe light sensitivity,
Clinuvel granted orphan drug status on 2 designations - Mar 11, 2008
Trading Markets (press release),The first designated disease, erythropoietic porphyria (EPP), is a rare genetic disease with severe skin symptoms with no current effective preventative
Minor ops, major risks - Mar 13, 2008
Health24.com,Breedt also mentioned that many people in South Africa suffer from porphyria, which means that they are unable to deal with anaesthetic.
Isabel Allende: kith and tell - Mar 20, 2008
Telegraph.co.uk,...disadvantaged women and children she set up in memory of her daughter, who died, aged 29, after a year-long coma caused by a genetic form of porphyria.
Big week for Australian biotechs - Mar 11, 2008
Australian Life Scientist,Orphan drug status has been awarded for erythropoietic porphyria (EPP), a rare genetic disease in which sufferers have severe light-sensitivity.
Why Isabel Allende agreed to direct Zorro: The Musical - Mar 2, 2008
Times Online,Since her untimely death (in 1992 from porphyria), I have been conversing with her spirit constantly. It is not a sad monologue, it's a joyful and lively
Amsterdam Molecular Therapeutics Reports Full Year Results 2007 - 20 Feb 2008
FOXBusinessGlobal rights for acute intermittent porphyria treatment - Exclusive license to all gene therapy products from CIMA Total revenues for year ended December
This year's Brighton Festival looks set to stun - 20 Feb 2008
The Argus.co.uk,It is inspired by William Blake's The Songs Of Innocence And Experience and Robert Browning's poem Porphyria's Lover. Portslade's Bafta-nominated Blast
The madness of history - Feb 9, 2008
Ottawa Citizen,Some years ago two British doctors argued that, taken together, his behaviour and physical symptoms suggest that he suffered from the rare disease porphyria
PARASITIC EXTIRPATION: New Song Posted Online - Feb. 4, 2008 - Feb 4, 2008
Blabbermouth.net,PARASITIC EXTIRPATION, the new Massachusetts/New Hampshire-based death metal band consisting of former members of PORPHYRIA and THE TASTE OF SILVER along
Medical Alert - Feb 1, 2008
Parade MagazineFluorescent light also can aggravate skin rashes in people with lupus, eczema, dermatitis or porphyria. Perhaps most important, the bulbs contain mercury.
Therapist to write book on transforming power of grief - Feb 8, 2008
San Diego Union Tribune,Allende wrote a book called “Paula,� which follows her journey after her daughter was diagnosed with porphyria, a genetic disease.
Administration Request for FDA Fails to Meet US/Global Needs - Feb 4, 2008
Centre Daily Times,Celiac Disease Alliance American Dietetic Association American Heart Association American Liver Foundation American Porphyria Foundation American Red
Porphyria Cutanea Tarda Facts and Treatment - Dec 15, 2007
American Chronicle,People with porphyria cutanea tarda experience chronic, recurring blisters of various sizes on sun-exposed areas such as the arms, face, and especially the
Court ruling impacts 'Agent Orange' vets - Dec 24, 2007
Alexandria Echo Press,The 11 diseases presumed to be service connected for such veterans are chloracne, porphyria cutanea tarda, soft-tissue sarcoma (other than osteosarcoma,
Twelve Diseases That Changed Our World - Dec 25, 2007
Journal of American Medical Association (subscription),Hemophilia and porphyria are the only noninfectious illnesses to make the list. History, science, personalities, and public health are successfully
Simulations of Ailing Artists’ Eyes Yield New Insights on Style - Dec 4, 2007
New York Times,Dr. Arnold has suggested that van Gogh suffered a congenital liver-centered metabolic disease, acute intermittent porphyria, that can provoke episodic
Home Remedies for Constipation – Constipation Relief Tips - Dec 12, 2007
American Chronicle,...to include codeine, loperamide, morphine, and particular antidepressants of a tricyclic composition; underlying illnesses; inherent and acute porphyria;
Treatment of an aneurysm depends on its size, location - Dec 9, 2007
SouthCoastToday.com,DONOHUE: Relatives have told me that a condition called porphyria affects some of our family members. They say it causes uncontrollable anger,
EDITORIAL: Maryland puts bite into vaccination law - Nov 30, 2007
Anderson Herald Bulletin,However when she was about fourteen years old she was doing a science report on Porphyria, and got sidetracked, and came to me one day and said “mom I think
Understanding Porphyria: No Vampires Here - Nov 25, 2007
Imperial Valley News,Porphyria is not a single disease but a group of at least eight disorders. Symptoms vary, but among them are some that have, in ancient times,
sir abraham was a master of medicine - Oct 30, 2007
Scotsman,...in america. he returned to scotland where he was awarded the edinburgh university gold medal for his md thesis on the inherited condition porphyria,
differential diagnosis in internal medicine: from symptom to diagnosis - Nov 6, 2007
Journal of American Medical Association (subscription),...furthermore, there are some other, albeit minor, confusing aspects. for example, the section on abdominal pain mentions porphyria. however, it extends the
dead poets to haunt armstrong-browning - Oct 29, 2007
Baylor University The Lariat Online,...wichita falls senior megan mcclane as porphyria; amberg as porphyria's lover; and dr. david white, full-time lecturer in the classics department,
photographs and memories - Nov 3, 2007
Centre Daily Times,...farming accident and watching kasey knauff attend her first day of kindergarten despite suffering from congenital erythopoietic porphyria. cep is a rare
dr. rudi schmid, 85; played key role in creating us liver ... - Nov 22, 2007
Los Angeles Times,...he developed the first animal model for porphyria, a defect in enzymes in the red blood cell that causes skin and neurological problems. he also studied
rudi schmid, 85, leading liver researcher is dead - Nov 18, 2007
New York Times,...are disrupted. the disorders can cause neurological problems and mental disturbances. dr. schmid and others developed a method to induce porphyria in
king george's muffineer - Nov 9, 2007
Times Online,...of king george and might think he always was…. today recognised as a sufferer of the rare disorder porphyria, he had had episodes of insanity in 1765,
a comeback for the `great man' theory? - Nov 3, 2007
Toronto Star,...during whose reign the american colonies were lost, was not mad, but misunderstood? it's now accepted that he suffered from a severe form of porphyria,
several dogs have earned a spot in history - Nov 1, 2007
CNN...would cause the american colonists to rebel. modern medicine attributes king george's apparent madness to porphyria, a genetically transmitted disease
Bradley Pharmaceuticals to Feature Elestrin(TM) at North American ... - Sep 28, 2007
CNNMoney.com...by fluid retention, hypocalcemia, asthma, diabetes mellitus, epilepsy, migraine, porphyria, systemic lupus erythematosus, and hepatic hemangiomas.
Venditto Declares "Agent Orange Awareness Day" - Oct 10, 2007
Northender,Porphyria cutanea tarda, respiratory cancers, prostate cancer, multiple myeloma, acute and subacute transient peripheral neuropathy, and Type 2 diabetes are
GOTTA DO IT - Oct 10, 2007
Joliet Herald News,Pat O'Hare, a New Lenox resident for the last 15 years, has been battling acute intermittent porphyria. Benefit is to help raise funds for Pat's medical
Cherry Garcia and the End of Socialized Medicine - Oct 9, 2007
City Journal,...cystic fibrosis, Parkinson’s, and Huntington’s disease; and for porphyria, the nervous-system disorder thought to have afflicted King George III.
FDA Approvals: FluMist, Totect, Soma - Sep 27, 2007
Medscape (subscription)Carisoprodol is contraindicated in patients with acute intermittent porphyria and in those who are allergic to or have had idiosyncratic reactions to a
Democrat activist Holtshopple dies - Aug 29, 2007
The Capital Times,Holtshopple had been ill for several years with porphyria, a blood disease, said his wife, Lydia Bickford. Holtshopple, a West High School graduate,
GOTTA DO IT - Sep 9, 2007
Joliet Herald News,Pat O'Hare, a New Lenox resident for the last 15 years, has been battling acute intermittent porphyria. Benefit to help raise funds for medical costs.
GOTTA DO IT - Sep 2, 2007
Joliet Herald News,Pat O'Hare a New Lenox resident for the last 15 years has been battling Acute Intermittent Porphyria. Benefit to help raise funds for Pat's medical costs.
Pregnancy in a Patient with Congenital Erythropoietic Porphyria - Aug 8, 2007
New England Journal of Medicine (subscription),To the Editor: Congenital erythropoietic porphyria, a rare autosomal recessive disorder of heme biosynthesis, results from markedly deficient
Last Line: Nigerian Noir - Aug 7, 2007
EsquireSome of the inspiration came from Robert Browning’s poem "Porphyria's Lover," a dramatic monologue about a lovelorn young man who strangles his girlfriend.
Schumann's haemorrhoids and hangovers - Aug 8, 2007
Telegraph.co.uk,It reminded me of a biography of King George III which argued that he was suffering from porphyria and therefore not insane. Really?
From serious to silly, state gets big batch of new laws - Jul 22, 2007
Seattle Times,Sufferers of porphyria, an extreme sensitivity to light that can lead to blisters, burns and scars, have been added to the list of people who qualify for
Filing Agent Orange Claims - Jul 24, 2007
Military.comPorphyria cutanea tarda (must occur within one year of exposure to Agent Orange). * Respiratory cancers (cancer of the lung, bronchus, larynx or trachea).
'Pirate Master' Host Has New Film - Jul 12, 2007
BuddyTVThe main cast includes Anton Pardoe (The Godson) as The Narrator, Roselyn Sanchez (Without a Trace, Rush Hour 3) as Porphyria, Patrick Bachau (House,
Bradley Pharmaceuticals Announces Launch of Elestrin(TM) - Jun 13, 2007
PR Newswire (press release),...by fluid retention, hypocalcemia, asthma, diabetes mellitus, epilepsy, migraine, porphyria, systemic lupus erythematosus, and hepatic hemangiomas.
The undefeated - 28 Apr 2007
Guardian Unlimited,It was written at her daughter Paula's bedside, after the 29-year-old had fallen into a year-long coma following complications due to porphyria.
Treatment for acute intermittent porphyria - Apr 2, 2007
News-Medical.net,Persons affected will intermittently suffer from the symptoms of porphyria throughout their entire life. Upon occasion, they appear in adolescence and more
Valerie’s Bloody Good Time - Apr 24, 2007
Blogger News NetworkThis is not to say that the porphyria symptoms in the book are textbook; because they aren’t, as the lead characters still get to take advantage of
Gregoire saves clause for real emergencies - Apr 24, 2007
The Olympian,That first emergency clause was on a bill adding porphyria to the list of disabilities for special parking privileges. The second was on setting the
Chlamydia Pneumoniae in Chronic Fatigue Syndrome and Fibromyalgia ... - Apr 24, 2007
ProHealth's ImmuneSupport.com,In addition, Stratton's work found that Chlamydia pneumoniae causes a condition of secondary porphyria 11 that engenders further misery and suffering.
Wellcome Collection, London - Apr 2, 2007
24 Hour Museum,From the macabre to the bizarre to the beautiful, you will be able to see objects as disparate as 'Porphyria' (a book allegedly covered with the skin of the
By Brian Gawley, Peninsula Daily News - Apr 24, 2007
Peninsula Daily,Three Kessler bills already signed into law will add porphyria to the list of disabilities that qualify for a handicapped-parking pass; establish a poet
Gregoire signs law phasing out fire retardants in some products - Apr 19, 2007
Longview Daily News,A measure adding porphyria -- an extreme sensitivity to light that can lead to blisters, burns and scars -- to the list of disabilities for special parking
Bradley Pharmaceuticals' Elestrin(TM) Receives New Patent to 2022 - Apr 13, 2007
Drug Newswire (press release),...by fluid retention, hypocalcemia, asthma, diabetes mellitus, epilepsy, migraine, porphyria, systemic lupus erythematosus, and hepatic hemangiomas.
An Acute Attack of Porphyria in a Patient Taking Duloxetine - 28 Feb 2007
Psychosomatics (subscription)TO THE EDITOR: Variegate porphyria shares with other acute porphyrias the symptom triad of red rash, abdominal pain, and neuropsychiatric disturbances.
Amsterdam Molecular Therapeutics Obtains License to AMT-020 for ... - 28 Feb 2007
Genetic Engineering News (press release),The license allows AMT to initiate the clinical development of AMT-020 to treat acute intermittent porphyria. AMT-020 is an AAV vector gene therapy
Licensing | Porphyria | Drug development | University of Navarra - 28 Feb 2007
Science Business (subscription),The licence allows AMT to initiate the clinical development of AMT-020 to treat acute intermittent porphyria. This follows successful collaboration between
Amsterdam Molecular Therapeutics BV Receives Global Rights to ... - 28 Feb 2007
PharmaLive.com (press release),Acute intermittent porphyria is an inherited disease characterised by attacks of acute abdominal pain, muscular weakness and a complex array of
Fundraiser aims to help Boyertown grad with debilitating diseases - 28 Feb 2007
Pottstown Mercury,Adding to the discomfort the RSD symptoms cause, Lindsay was also diagnosed with porphyria, which is a group of disorders characterized by a deficiency in
UTMB researchers focus on porphyrias - Feb 7, 2007
Daily News - Galveston County,This is because support to train porphyria experts has been lacking. That’s not a good thing for those who suffer from the rare and often painful disorders.
Imprisoned by sensitivity to light - Feb 3, 2007
Whittier Daily News,Richard MacKenzie, Director of Adolescent Medicine at Childrens Hospital Los Angeles, first suspected porphyria after Mimi was admitted to his hospital,
Piper calls her own tune - Feb 19, 2007
Times Online,With George III it was porphyria. With Frida Kahlo it was cerebral palsy. For Billie Piper it is what those of us who suffer from it refer to as the Real
Smokin' medicine: Supporters believe marijuana's medicinal value ... - Feb 8, 2007
Colorado Springs Independent,He might have porphyria — an enzyme abnormality — or an overstock supply of hepatitis antibodies, although he's never had the disease or a vaccination.
Jane Austen on Screen, Part I: What Is Regency? - Jan 16, 2007
Blogcritics.org,...of the fact that King George III was suffering from a very rare genetic disease called porphyria, which mimicked several different mental illnesses.
Courting the the avant-garde - Jan 6, 2007
Salt Lake Tribune,His madness - actually bouts of temporary dementia brought on by the blood disease porphyria - couldn't have helped his reputation with the colonists,
PAXIL , information about paxil medication , snorting paxil - Dec 27, 2006
Indymedia Colombia,Ask your doctor, nurse or carisoprodol Love of carisoprodol in this butalbital and tablet to take citalopram even if you have acute intermittent porphyria.
Ultram, ultram ingredient , buy ultram online - Dec 27, 2006
Indymedia Colombia,...to the fioricet A vision of fioricet respectively, instead of ambien has not butalbital these directions, ask your doctor if you have porphyria.
BUY CHEAP MERIDIA , cheap meridia online , cheapest meridia - Dec 25, 2006
Indymedia Colombia,Most cases involving a buy cheap meridia of children or buy cheap meridia monitoring if you have acute intermittent porphyria. Meridia should be taken with
PAXIL , information about paxil medication , snorting paxil - Dec 27, 2006
Indymedia Colombia,Ask your doctor, nurse or carisoprodol Love of carisoprodol in this butalbital and tablet to take citalopram even if you have acute intermittent porphyria.
Ultram, ultram ingredient , buy ultram online - Dec 27, 2006
Indymedia Colombia,...to the fioricet A vision of fioricet respectively, instead of ambien has not butalbital these directions, ask your doctor if you have porphyria.
BUY CHEAP MERIDIA , cheap meridia online , cheapest meridia - Dec 25, 2006
Indymedia Colombia,Most cases involving a buy cheap meridia of children or buy cheap meridia monitoring if you have acute intermittent porphyria. Meridia should be taken with
Conquistadora Gets Makeover via Writer, Philanthropist Allende - Nov 23, 2006
Bloomberg...resident keeps busy with the Isabel Allende Foundation, which she created to honor her daughter, Paula Frias, who died in 1992 at age 29 from a porphyria attack ...
The Legacy of Agent Orange - Nov 18, 2006
OhmyNews International,There is also some limited evidence that Agent Orange may cause respiratory cancers, prostate cancer, multiple myeloma, Porphyria cutanea tarda (a type of skin ...
Search the web for more resources on
|
|
Health Home |
Conditions |
Cancer |
Medications |
Surgery |
Vaccines
mongabay.com
Disclaimer:
Contact a physician with regard to health concerns. Email requests for further health information will be discarded.
The materials contained on this Web site are for informational purposes only and do not constitute health or medical advice. Use of information on this site does not create or constitute any kind of agreement or contract between you and the owners or users of this site, the owners of the servers upon which it is housed, or anyone else who is in any way connected with this site.
Many links on health.mongabay.com lead to other sites. health.mongabay.com does not sponsor, endorse or otherwise approve of the materials appearing in such sites. Nor is health.mongabay.com responsible for dead or misdirected links.
|
COPYRIGHT 2006 MONGABAY.COM
|
|
