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Fundraiser planned for local child  -  Feb 27, 2008
Arkcity.netKhristian was born with Pfeiffer Syndrome, a condition resulting from the premature fusion of the skull characterized by bulging eyes,

Rare condition claims life of little Ewan  -  Dec 10, 2007
Sunderland Echo,Ewan, 17 months, was one of just eight babies born each year with Pfeiffer syndrome, a genetic disorder which causes skull bones to fuse prematurely.

fall ball raises money to help grant wishes  -  Nov 6, 2007
UM Maneater,...by emily coleman, staff writer. posted november 06, 2007. eleven-year-old pfeiffer syndrome patient joey lindsey dances during the 'cha cha slide' with

el paso family excited about new children's hospital  -  Nov 8, 2007
KDBC,...for her son to receive treatment and surgery for pfeiffer syndrome, a condition where a person is born with the bones in their head fused together. now,

Crouzoun-Pfeiffer syndrome  -  Oct 11, 2007
Rocklin and Roseville Today,...said the 61-year-old former automobile executive in a telephone interview from his California home. “He was born with Crouzoun-Pfeiffer syndrome.

100 show support for kids' hospital  -  Oct 17, 2007
El Paso Times,...said Jennifer Kilmer, whose 4-year-old son, Jacob Happ, has Pfeiffer syndrome, a craniofacial condition in which the skull is unable to grow normally.

Local mother: Will new children's hospital help my son?  -  Aug 16, 2007
KVIA,Jacob, who has a tracheotomy, has Pfeiffer's syndrome, a rare condition that does not let him breathe through his nose. He and his parents must travel to a

The return of Prince  -  Jul 26, 2007
Times Online,The couple’s first child died shortly after birth from the rare Pfeiffer syndrome, and Prince understandably withdrew even further from the public eye.

Prince is determined to revolutionise the music industry  -  Jul 14, 2007
Daily Mail,Their son Gregory was born on October 16, 1996 with Pfeiffer syndrome – craniosynostosis – a rare condition in which the skull hardens prematurely.

Real super donation; Family receives $20000 to purchase accessible van  -  Apr 11, 2007
Chatham Daily News,Three-year-old Ashley lives with a genetic condition called Pfeiffer Syndrome Type II, a rare developmental disorder which has caused neurological problems.

For The Record  -  Apr 4, 2007
St. Augustine Record (subscription),A fundraiser for William Thompson, a St. Augustine toddler who suffers from Pfeiffer Syndrome, will be held from 2 pm to 8 pm on Friday in the St. Augustine

Rare genetic condition plagues Owensboro boy  -  Feb 12, 2007
WFIE-TV,Braden did survive, but was soon diagnosed with Pfeiffer Syndrome. A genetic mutation caused his skull to be fused at birth, so it doesn't grow with him or

A new nursery life for brave Callum  -  Jan 1, 2007
ic Coventry,Callum, aged two, was born with the rare genetic disorder Pfeiffer syndrome, which means his head is unable to grow properly, causing facial deformities.

Where are they now?  -  Dec 30, 2006
St. Augustine Record (subscription),In the news: We followed William Feller's family as they dealt with his Pfeiffer Syndrome and moved to St. Augustine to try to get him into the Florida

Care procured; charity assured  -  28 Dec 2006
Richmond Times Dispatch,His 9-year old son, Christopher, has a genetic condition called Pfeiffer Syndrome that is characterized by abnormal growth of skull and facial bones.

Care procured; charity assured  -  13 Dec 2006
Richmond Times Dispatch,His 9-year old son, Christopher, has a genetic condition called Pfeiffer Syndrome that is characterized by abnormal growth of skull and facial bones. ...

Feller thankful for holiday gift  -  Nov 23, 2006
St. Augustine Record (subscription),Ever since her husband arrived and she with their 2-year-old son, William, who was born with Type II Pfeiffer Syndrome, she said they've been overwhelmed by ...

MONTGOMERY COUNTY Disabled Teen Was Raped at Hospital, Mother Says  -  Nov 21, 2006
Washington Post,The teenager, who suffers from Pfeiffer syndrome -- a rare genetic disorder characterized by abnormalities of the head and other parts of the body -- as well ...



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