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Lucy works through her grief for Liam  -  24 Mar 2008
Journal Live,He underwent emergency surgery to repair the tear, which had been caused, doctors thought, by a condition known as Marfan Syndrome. But four days later,

Market fundraiser for love of Steven  -  24 Mar 2008
Huddersfield Examiner,He suffers from a rare condition, Marfan Syndrome, which means he has some difficulty walking and sometimes uses a stick. Steven has two brothers,

The long and short of it: Marfan syndrome  -  Mar 17, 2008
Independent,The midwife confirmed what I already instinctively knew – I had passed on the genetic disorder Marfan syndrome to my baby. Marfan syndrome is an inherited

Pregnancy: Would you risk death to have a baby?  -  Mar 23, 2008
Telegraph.co.uk,..."I've always known pregnancy would be a risk for me, as I have Marfan's syndrome," says Catherine, who is a product manager for a Northampton car company.

UCSF Opens Multidisciplinary Marfan Clinic  -  Feb 26, 2008
UCSF Today,The UCSF Heart and Vascular Center has opened a clinic specializing in Marfan syndrome and related disorders as part of the new UCSF Program in

Family provides best medicine  -  Mar 1, 2008
Amarillo.com (subscription),Carie and her daughter will be traveling to Dallas on Thursday to begin treatment for Marfan Syndrome, which she was diagnosed with at the age of 2.

Dr Thomas Stuttaford answers your questions on joint problems and ...  -  Mar 5, 2008
Times Online,One of these is known as Ehlers Danlos syndrome, the other as Marfan's syndrome. It shouldn't be forgotten that the degree of normal mobility in everybody's

Tragedies create special bond  -  Mar 7, 2008
Canada.com,Young athletes may also suffer myocarditis, or heart arrhythmia; aneurisms; Kawasaki's disease; and Marfan's syndrome, which tends to afflict tall people,

Police have to end search for Steven  -  Feb 29, 2008
Huddersfield Examiner,He suffers from a rare condition, Marfan Syndrome, which meant he could not work. He has probably had it all his life, but it was diagnosed when he was

Sir Mark is ready to quit the Rock to be closer to his mother  -  Mar 15, 2008
Telegraph.co.uk,A senior courtier tells me that Charles wants to visit the 63-year-old, who suffers from a rare genetic disorder called Marfan syndrome, as soon as

Prince Charles's favourite composer JohnTavener in fight for life  -  Mar 8, 2008
Daily Mail,Tavener, who survived a stroke when he was just 30, has Marfan Syndrome, an inherited condition that attacks the body's connective tissue.

Monstrously prolific indie-rock icon wants to create 'as much ...  -  Mar 10, 2008
MTV.comThe condition Cox refers to is Marfan syndrome — a connective-tissue disorder that has plagued him since childhood, and which can have serious

DVD Report  -  Mar 9, 2008
Boston Globe,Deleted scenes include an intriguing coda speculating that if the film's science had been around ages ago, figures such as Lincoln, who had Marfan syndrome,

for the record  -  Feb 28, 2008
Middlebury Campus (subscription),A sufferer of Marfan syndrome - a genetic disorder of the connective tissue that gives him unnaturally long and spindly limbs - the front-man's stage

Debut album by Atlas Sound introspective and ethereal  -  Feb 27, 2008
Swarthmore College The Phoenix Online,Marfan syndrome — a condition that, at 16, forced him to spend a summer in a children’s hospital, undergoing multiple surgeries on his chest and back.

Up & Coming  -  Mar 5, 2008
TheStranger.com,...the digital underground whose own blog posts tend toward the NSFW; he strikes a rather shocking profile, due to the wasting effects of Marfan syndrome.

LIVE: Atlas Sound Break A Rare Sweat  -  Feb 29, 2008
ChartAttack,After noticing he was sweating, the gaunt frontman — who said he didn't have enough body fat to produce sweat (he has Marfan syndrome, which produced his

Bradford Cox rocks in a weird, dreamy way  -  Feb 29, 2008
Yale Daily News,But there’sa twist: Cox has long suffered from Marfan Syndrome, the disease that accounts for his disproportionate body type, if not his exceptional

Atlas Sound’s Bradford Cox vows to keep his drama to himself  -  Feb 28, 2008
Georgia Straight,As a teenager, Cox was diagnosed with Marfan syndrome, a genetic condition that weakens the body’s connective tissues, and whose sufferers—most famously

National Girls & Women’s Sports Day  -  Feb 27, 2008
jewishinstlouis.org,Hyman died of Marfan's Syndrome in 1986 while competing in a volleyball tournament. Since that time, NGWSD has evolved into a day to acknowledge the past

The Genetic History Of GATTACA  -  Feb 27, 2008
io9,Abraham Lincoln (Marfan syndrome), Jackie Joyner-Kersee (asthma) and John F. Kennedy (Addison's disease) were shown over a background of stars with

Pitchfork, Decoded  -  20 Feb 2008
Jossip,His condition, Marfan syndrome, has proven difficult to separate from his music. … Cox plays and sings in Atlanta five-piece Deerhunter, but it’s tempting

Pals step out for Cats fan Liam  -  Feb 19, 2008
Sunderland Echo,Just days earlier, doctors had diagnosed Liam with little-known Marfan syndrome after he complained of chest pains while working on a building site.

Mother fighting Marfan Syndrome for her sons  -  Feb 7, 2008
WKTV,She is talking about her twin sons - Matthew died of complications due to Marfan Syndrome when he was just 25-years old, and his brother, Michael,

Mother's marathon raises awareness of syndrome  -  Jan 29, 2008
ABC Online,Marfan syndrome is a genetic condition which weakens the body's connective tissue and can result in death, for example when the aorta stretches and ruptures

Have a heart  -  Feb 15, 2008
Daily Mining Gazette,February is National Marfan Syndrome Awareness Month and the kickoff for the annual Have Heart campaign sponsored by the National Marfan Foundation.

Elective Aortic Root Surgery in Marfan Syndrome Appears Safe and ...  -  Jan 31, 2008
DG NewsBy Ed Susman FORT LAUDERDALE, FL -- January 31, 2008 -- Surgery to repair and replace the aortic root in Marfan syndrome patients can be accomplished with

‘Hang a Heart’ campaign honors son’s memory  -  Feb 10, 2008
Utica Observer Dispatch,By JESSICA RYEN DOYLE NEW HARTFORD — Seven years ago this month, Matthew Nasutovicz died from complications of Marfan syndrome.

Giant Anterior Sacral Meningocele Presenting as Bacterial ...  -  Feb 15, 2008
Ortho SuperSite,Dural ectasia in the Marfan syndrome: MR and CT findings and criteria. Genet Med . 2000; 2(3):173-179. Nallamshetty L, Ahn NU, Ahn UM, et al.

New Marfan Picture Book for Children Now Available  -  Jan 30, 2008
HealthNewsDigest.com,The book features vivid illustrations of diverse children and families with Marfan syndrome, a potentially fatal genetic disorder.

National Marfan Foundation Leads Educational Efforts for Correct ...  -  Feb 11, 2008
Market Wire (press release)In some cases, such as that of Jonathan Larson, the patient exhibited many outward signs of Marfan syndrome, a genetic disorder that puts people at up to

And I would walk 500 miles…  -  Feb 5, 2008
Narooma News,Trish Carey has returned to Dalmeny, in debt and feeling a little sore after completing her 1200-kilometre trek to raise awareness of Marfan syndrome.

Wagga stop for grandma on disease awareness trek  -  Jan 27, 2008
ABC Online,Trish Carey's 28-year-old daughter died more than three years ago from Marfan Syndrome, which is believed to be the main cause of sudden death in young

Please help us to find our Steven  -  Feb 7, 2008
Huddersfield Examiner,Now it can be revealed that Steven suffers from a rare condition, Marfan Syndrome, which meant he could not work. He has probably had it all his life,

Ensemble brings diversity to the stage  -  Jan 24, 2008
Lexington Minuteman,A registered nurse, Kouri is the mother of a son diagnosed with Marfan syndrome in 2002. As February is National Marfan Awareness Month, Kouri choreographed

US Women’s National Training Team Participates in National Girls ...  -  Feb 3, 2008
USA Volleyball,Hyman died of Marfan's Syndrome in 1986 while competing in a volleyball tournament in Japan. She had just been substituted out of a match when she had

Blood, sweat and lots of tears  -  Jan 22, 2008
Narooma News,Trish who lost her daughter Lisa Howard-Smith in 2004 to a complication from Marfan Syndrome, an aortic dissection. Since then Trish has been determined to

Boy's Make-A-Wish upon a star comes true Oquawka family heading to ...  -  Feb 16, 2008
Burlington Hawk Eye,Jessa was born with Marfan syndrome, a connective tissue disorder. Jennifer Rowe, Zach's wish granter, has been working with the Bundys since the family

Cape Breton teen takes torch as IWK Champion Child  -  Feb 18, 2008
The Guardian,MacDonald has Marfan syndrome, a genetic disorder of the connective tissue that can affect the skeletal system, eyes, lungs, blood vessels and heart.

Every School Every Thursday -- West Des Moines & Clive  -  Feb 14, 2008
DesMoinesRegister.com,...attached earlobes and phenylketonuria, plus some autosomal dominant genetic traits like Marfan syndrome, widow's peak and achondroplasia.

HEALTH SCENE  -  Jan 25, 2008
Contra Costa Times,Marfan Syndrome -- The National Marfan Foundation is offering a booklet, "Marfan Syndrome: A Guide for Teens." Free. http://www.marfan.org.

Packer spurs late run off bench  -  Feb 5, 2008
OSU - The Lantern,The event is in its 22nd year and was created to remember Olympic volleyball player Flo Hyman, who died of Marfan's syndrome in 1986 while competing in

5 things to know about poliosis  -  Feb 6, 2008
Myrtle Beach Sun News,Marfan's syndrome and Waardenburg's syndrome are other genetic disorders where this condition is noticed. Vitiligo is a skin condition that destroys

Memorial student named Children’s Miracle Network 2008 Champion Child  -  Feb 13, 2008
Cape Breton Post,A patient of the IWK since he was nine months old, MacDonald was born with Marfan syndrome, a hereditary condition that affects his connective tissues.

Loyola opens new medical center  -  Jan 22, 2008
Chicago Suburban News,It will also feature a neonatal follow-up clinic, an autism clinic and a Marfan syndrome clinic as well as surgical specialists.

Dr. Sam Witryol Honored As Part Of National Girls and Women In ...  -  Feb 12, 2008
UConn Huskies,Hyman died of Marfan's Syndrome in 1986 while competing in a volleyball tournament in Japan. Since that time, NGWSD has evolved into a day to acknowledge

BASN's Black History Spotlight  -  Feb 7, 2008
BlackAthlete.netAn autopsy later found the cause to be Marfan's syndrome, a congenial heart disorder. In recognition of her accomplishments, she was inducted into the

In schoolgirl athletics, it´s all about opportunities  -  Feb 6, 2008
MaineToday.com,National Girls and Women in Sports Day began in 1987 in honor of Flo Hyman, a US Olympic volleyball player who died of Marfan Syndrome in 1986.

Tech News Briefs  -  Jan 31, 2008
Johns Hopkins News-Letter,His accomplishments in the field involve being the first to describe Marfan syndrome's cluster of characteristics, working to identify genes leading to

First modified Bentall operation conducted  -  Jan 29, 2008
Independent-Bangladesh,The patient, having marfan syndrome and ascending aortic aneurysm with aortic regurgitation Grade-IV, has been struggling with his blood pressure of 130/0mm

Disney, celebrities inspire teens to dream of careers  -  Jan 23, 2008
St. Petersburg Times,...whose brother Eric is a standout basketball player at Brandon High, also harbored dreams of playing sports before being diagnosed with Marfan syndrome,

Victor McKusick Wins Japan Prize  -  Jan 22, 2008
Johns Hopkins Gazette,He was led to the then-budding field of genetics when he became the first to describe the cluster of characteristics of Marfan syndrome, an inherited

Medical Edge: Fighting genetic disorder through therapy  -  Dec 28, 2007
Post-Bulletin,DEAR MAYO CLINIC: Are there any drugs that are recommended for people at risk of Marfan syndrome? Are there any that should be avoided? Marfan syndrome is a

What Lincoln had  -  Nov 30, 2007
Nature.com (subscription),The theory that Lincoln had Marfan syndrome was proposed in 1962. It became a white-hot debate for a few years and then it sort of cooled off.

Lincoln had cancer, doctor theorizes  -  Nov 29, 2007
Chicago Tribune,For years, some doctors have believed Lincoln had Marfan syndrome, which affects the body's connective tissue and causes long limbs.

Grandmothers marathon walk for Marfan  -  Dec 4, 2007
Narooma News,Marfan syndrome is a life-threatening genetic disorder of connective tissue involving multiple organs within the body. The disorder particularly affects the

The assassin's hand  -  Dec 2, 2007
Baltimore Sun,But it's an interesting suggestion, and it would seem to fit what's known about Lincoln better than the diagnosis of Marfan syndrome, which was put forward

Doctor thinks Lincoln is first recorded case of rare genetic disease  -  Dec 2, 2007
San Francisco Chronicle,Others have speculated that Lincoln might have had Marfan syndrome, a genetic condition characterized by long arms, legs and fingers, loose joints,

Nutrition counseling available  -  Dec 11, 2007
Belleville News Democrat,Children and young adults with Marfan's syndrome are being sought to test a new drug that may prevent a potentially deadly consequence of the disease.

HEALTH SCENE  -  Dec 19, 2007
Contra Costa Times,Marfan Syndrome -- The National Marfan Foundation is offering a new booklet, "Marfan Syndrome: A Guide for Teens." Free. http://www.marfan.org.

Health briefs: Dec. 11  -  Dec 10, 2007
Naples Daily News,Registration is requested. n Marfan’s In Paradise, a network group for people affected by Marfan Syndrome, will meet at 5 pm Wednesday at HealthPark,

Letters | THIS IS WAR & THE BODIES ARE EVERYWHERE  -  Dec 7, 2007
Philadelphia Daily News,There have been other loss of life in my family, most recently my oldest daughter, who I loved, in February from sarcodosis and Marfan syndrome,

Jefferson vascular surgeon heads national trial for torn aorta repair  -  Dec 18, 2007
Medicexchange,The exact cause is unknown, but risks include high blood pressure, smoking, atherosclerosis (hardening of the arteries), trauma and Marfan's syndrome.

Ousted exec arrested after standoff  -  Nov 30, 2007
Chronicle-Telegram,Cole has Marfan syndrome, a connective tissue disorder, that caused a tear in his aorta five years ago. At one court hearing, Cole told Betleski his medical

Clinical trial of drug for Marfan's Syndrome calls for volunteers  -  28 Nov 2007
News from Washington University in St. Louis,27, 2007 -- Children born with Marfan syndrome, a genetic disorder involving the connective tissue, have a variety of physical signs - disproportionately

Science: Abraham Lincoln's Death  -  28 Nov 2007
Washington Post,After Marfan syndrome was proposed in 1962, there has not been much more on the genetic front. There have been half-hearted proposals that he had Stickler

understanding marfan syndrome  -  Nov 15, 2007
NBC5i.com,15: dr. nancy snyderman reports on how this disorder affects the body and how it changed one little girlâ’s entire world. understanding marfan syndrome

research trial represents hope for canadians with marfan syndrome  -  Nov 9, 2007
Market Wire (press release)...the us and belgium represents great hope for the 1 in 5000 canadians living with marfan syndrome. marfan syndrome is largely unknown and potentially

meriden family's double degree delight  -  Nov 20, 2007
ic Coventry,...matthew is set to marry next year. his partner also has marfan syndrome, a genetic disorder characterised by disproportionately long limbs,

keith hardy setting his sights even higher  -  Nov 20, 2007
Minneapolis Star Tribune (subscription),...a mentor, an ultra-marathon runner, a toastmaster, president of the twin cities tall club, a sufferer of marfan syndrome and the first black elected to

old drug offers new hope against disease  -  Oct 28, 2007
Boston Globe,..."we really believe we have a fundamental new understanding of marfan syndrome," he said. normal muscles can repair themselves when injured by, say,

lively lad inherited ailment that killed his dad at just 23  -  Nov 3, 2007
This is Aberdeen,...only one in 9000 suffers the genetic condition, marfan syndrome, which wayne passed on to his son. today, four years after the death of the young chef,

playing from the heart  -  Nov 16, 2007
NBA.com..."the one main disease that you think about with height is something called marfan syndrome. some of these guys that are seven-feet tall, that is marfan

unique new quest added: daniel's quest  -  Nov 6, 2007
Warcry.com...a young gentleman with marfan syndrome, whose dream is to become a game developer. daniel wrote up his idea for a quest based on his character and his

the johns hopkins manual of cardiothoracic surgery  -  Nov 13, 2007
Journal of American Medical Association (subscription),...in treating patients with marfan syndrome, since two-thirds of such patients have chest wall abnormalities. a history of cardiovascular achievements,

health scene  -  Nov 14, 2007
Contra Costa Times,510-652-7000. marfan syndrome -- the national marfan foundation is offering a new booklet, "marfan syndrome: a guide for teens.

voice of new bohemia: "jonathan sings larson" cd/dvd released nov. 6  -  Nov 6, 2007
Playbill.com,...he died of an undiagnosed aortic aneurysm (believed to be a result of marfan syndrome). he was 35. to learn more about this condition,

sick girl meets beckham  -  Nov 7, 2007
The Province,...a nootka elementary third-grader who is "head over heels" for the handsome english soccer star, suffers from marfan syndrome, a connective-tissue

32 cubans swim to shore in palm beach; 1 dead  -  Nov 15, 2007
NBC6.net,...fol... armed men rob couple at starbu... robbers turn guns on swat team a couple is robbed at gunpoint... understanding marfan syndrome today show nov.

5 freeway tunnel reopens  -  Nov 15, 2007
KNBC.com,12 5 f... understanding marfan syndrome today show nov. 15: dr. nancy snyderman r... auto show goes green nov. 15, 2007 conan nolan reports from the l...

chuck bell's forecast: 11/15/07  -  Nov 15, 2007
NBC 4.com,...guys ... chuck bell's forecast: 11/15/0... expect windy, chilly friday get the forecast from meteorol... understanding marfan syndrome today show nov.

police shoot carjacking suspect  -  Nov 15, 2007
NBC 10.com,...nbc 10 reports police seek the public's help ... understanding marfan syndrome today show nov. 15: dr. nancy snyderman r... auto show goes green nov.

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