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Everything is Coming Up Kelly  -  Mar 18, 2008
Jossip,This year they were donating funds to the Krabbe Disease-focused Hunter’s Hope Foundation, founded by Football Hall of Famer Jim Kelly and his wife Jill for

Kelly Gang's Fifth St. Patrick's Day Fest Will Again Benefit ...  -  Mar 15, 2008
Minonline,Jim Kelly and wife Jill to combat Krabbe's Disease--the genetic blood disorder that took the life of their eight-year-old son Hunter in August 2005.

Hunter’s Day of Hope scheduled Saturday  -  Feb 4, 2008
Buffalo Bills Insider,...celebrated a significant milestone in August 2006 when New York State expanded its Newborn Screening Program to include the addition of Krabbe disease.

Names in the Game  -  Feb 16, 2008
International Herald Tribune,...who's son, Hunter, died 2 1/2 years ago of Krabbe disease, an inherited degenerative disorder of the central and peripheral nervous systems.

How Important Is The Umbilical Cord Blood?  -  Feb 2, 2008
American Chronicle,Hemophagocytosis, Bare Lymphocyte Syndrome, Wiskott-Aldrich Syndrome, Krabbe Disease, Acute Lymphocytic Leukemia, Hodgkin's Lymphoma, DiGeorge Syndrome,

$33 Million in Federal Earmarks Coming to WNY  -  Dec 27, 2007
WKBW-TV,Buffalo's Center for Excellence in Bioinformatics and Life Sciences. The institute will coordinate research initiatives to find a cure for Krabbe Disease.

Cord Blood Viable Option For Kids With Life-threatening Metabolic ...  -  Dec 11, 2007
Science Daily (press release)...an organization founded in memory of former NFL quarterback Jim Kelly's son Hunter, who died from Krabbe disease, an inherited metabolic disorder that

Umbilical cord blood can help metabolic disorders  -  Dec 10, 2007
Scientific AmericanOne metabolic disease Prasad's team treated is Krabbe disease, also known as Krabbe leukodystrophy, which affects the nervous system.

Unrelated Cord Blood Helps Infants With Metabolic Disorders  -  Dec 10, 2007
U.S. News & World Report,...the American Society of Hematology annual meeting in Atlanta. The US National Institute of Neurological Disorders and Stroke has more about Krabbe disease.

New Hope For Deadly Childhood Disease  -  Dec 13, 2007
Science Daily (press release)Some of these lysosomal-storage diseases, as they're called, include Krabbe disease (to which Buffalo Bills quarterback Jim Kelly lost his son, Hunter,

Former Bills QB Kelly at Eastview tonight  -  Dec 18, 2007
Rochester Democrat and Chronicle,Kelly and his wife, Jill, established the Hunter’s Hope Foundation in 1997 after their son, Hunter, was diagnosed with Krabbe Disease.

House votes to delay tougher border ID  -  Dec 18, 2007
Buffalo News,...$574780 for the Hunter James Kelly Research Institute’s Kelly Center for Krabbe disease. • $535800 for a police security camera system for the City of

newborn screenings expanded  -  Nov 23, 2007
Urbana/Champaign News-Gazette,...by kate clements springfield – a new state law is designed to protect infants from a series of genetic and metabolic disorders by catching and treating them

Daval International Limited Gains Approval for Phase IIB Trial of ...  -  Nov 26, 2007
ITNews,...has an "export only" listing on the Australian Registry of Therapeutic Goods and a TGA Orphan Status Designation for the treatment of Krabbe's disease.

Calendars of runs, walks and races  -  Oct 2, 2007
Dallas Morning News (subscription),Benefits Spark Foundation, Research for Krabbe Disease and other life-threatening diseases. SATURDAY, OCT. 6 — Audie Murphy Hero Run 10K, 5K and 1-mile,

Illness draws family closer  -  Aug 14, 2007
Forest City Summit,Finally, a neurological pediatrician from Mayo gave them the news: Makinley suffered from Krabbe disease, a rare inherited degenerative disorder of the

Benefit Saturday for Makinley Mills  -  Aug 14, 2007
Britt News-Tribune,Makinley, 11 months, daughter of Jeremy and Dawn Mills of Garner, has been diagnosed with Krabbe disease, a terminal degenerative neurological disorder.

Punching with purpose  -  Jul 15, 2007
Greensboro News Record,Hayden, 17 months old, has Krabbe disease, which is usually fatal by age 2. "I was thinking about him," Shane said. "Thinking about Hayden.

Viability Of Cord Blood In Treating Malignant Diseases  -  Jun 27, 2007
American Chronicle,Researchers state that newborn cord blood cell recipients, with no symptoms of Krabbe disease, have greater possibility of recovery than older babies.

Multiple Cranial Nerve Enhancement: A New MR Imaging Finding in ...  -  Jun 14, 2007
AJNR (subscription),3–5 Among leukodystrophies, cranial nerve involvement has been documented in infantile Krabbe disease. 6,7 Proposed mechanisms for the abnormal nerve root

Hunter's Hope gala set for July 27  -  May 31, 2007
Rochester Democrat and Chronicle,...(May 31, 2007) — The fifth annual Hunter’s Hope Candlelight Ball to fight Krabbe disease scheduled for 7 pm, July 27 at the Rochester Institute of

Senior project hopes to help find cure for Krabbe disease  -  Apr 25, 2007
Rochester Democrat and Chronicle,...(April 25, 2007) — Philip Vanderwall, a senior at Webster Thomas High School, organized an event to help fund research into Krabbe disease.

Doctor promotes blood tests for babies  -  Apr 26, 2007
Albany Times Union,Babies are screened for HIV, sickle-cell disease, cystic fibrosis and the most recent addition to the battery, Krabbe disease.

Built Just For A Boy  -  Apr 1, 2007
Hartford Courant,He learned that Krabbe disease will kill Ryan, who has already surpassed his life expectancy, and although the prognosis for Alyssa is better,

FRC Condemns Deception By Senators Specter and Harkin on Stem Cell ...  -  Apr 11, 2007
International News Service,...patients not only for blood diseases, but also diseases such as heart disease, cornea damage, rheumatoid arthritis, krabbe disease and many others.

Turkey hunter heeds the call  -  Apr 19, 2007
Rochester Democrat and Chronicle,...item that will benefit Jim Kelly's Hunter's Hope Foundation (named after the former Buffalo Bills quarterback's son, who died of Krabbe's disease).

Geared up for auto show  -  Feb 2, 2007
Bizjournals.com,Hope - the foundation created by Jim Kelly and Jill Kelly to fund research efforts to identify new treatments, therapies and a cure for Krabbe Disease.

Combo Therapy Offers Hope for Krabbe's Disease  -  Jan 15, 2007
Forbes,Krabbe disease, also called globoid-cell leukodystrophy, is an inherited disorder that eventually destroys the brain and nerves of the body.

Dramatic results from combo therapy surprises Krabbé-disease ...  -  Jan 12, 2007
innovations report,In people, the same genetic defect causes Krabbé disease, or globoid-cell leukodystrophy, an inherited disorder that destroys both the brain and the nerves

After the show, most 'Makeover' families happy  -  Dec 8, 2006
News & Observer,Jhyrve Sears' illness. Jhyrve was diagnosed in early 2004 with Krabbe Disease, a neurological disorder. She received chemotherapy ...

After the show, most 'Makeover' families happy  -  Dec 8, 2006
News & Observer,Jhyrve Sears' illness. Jhyrve was diagnosed in early 2004 with Krabbe Disease, a neurological disorder. She received chemotherapy ...

Health Information Rx Program on Newborn Screening  -  Nov 20, 2006
SpiritIndia,Micki Gartzke, a patient advocate from Shorewood, Wisconsin, lost her 13-month-old daughter, LeA Marie to a rare genetic disorder, Krabbe disease, in 1987. ...

Outcry as clinic offers 'designer baby' embryo screening for 200 ...  -  Nov 12, 2006
This is London,They include Fragile X Syndrome, Cystic Fibrosis, Diamond Blackfan, Krabbe's disease, Sickle Cell, Tay-Sachs disease and Marfan Syndrome. ...

UR presses quest for stem cell breakthrough  -  Nov 26, 2006
Rochester Democrat and Chronicle,...to neuron. Myelin degenerates in multiple sclerosis and leukodystrophies, rare genetic disorders such as Krabbe disease. The mice ...

New moms may donate umbilical-cord blood  -  Nov 13, 2006
Orlando Sentinel,She has been successful, for example, in using the treatment on patients with rare, inherited metabolic disorders, including Hurler syndrome and Krabbe disease ...

Health Watch  -  Nov 20, 2006
Organiser,...s Syndrome (MPS-II), Hunter’s Syndrome (MPS-IH), Kostmann Syndrome, Juvenile Chronic Myelogenouus Leukemia (JCML), Krabbe Disease, Juvenile Myelomonocytic ...

Designer babies?  -  Nov 13, 2006
World Magazine Blog,...screen for virtually all currently identified genetic disorders, including Fragile X Syndrome, Cystic Fibrosis, Diamond Blackfan, Krabbe's disease, Sickle Cell ...

NFL Hall-of-Famer Kelly visits children's home  -  Nov 24, 2006
Allentown Morning Call,Everybody needs the love.''. The life expectancy of children with Krabbe disease, the illness his son had, is about 18 months, Kelly said. ...

Embryo test for 200 diseases  -  Nov 14, 2006
Healthcare Today,Experts say the genetic screening which looks for virtually all known inherited diseases including Cystic Fibrosis, Krabbe's disease, Sickle Cell and Marfan ...

BILLS BLOG: Kellys to host fundraiser  -  Nov 16, 2006
Tonawanda News,Proceeds from the event support research of Krabbe disease, which took Hunter’s life in 2005. Country music recording artist Steve Azar will perform. ...

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