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Living -- and Riding -- with Friedreich's Ataxia  -  Mar 15, 2008
News10.net,The riders are headed to the national Friedreich's Ataxia convention in Las Vegas, where leading specialists will discuss the latest efforts in fighting the

Gabe and Izzy appear Friday on 'Today Show'  -  Mar 20, 2008
MLive.com,...has become a national speaker on bullying. In high school, children constantly bullied Ford -- whose Friedreich's ataxia was beginning to cause her to limp.

Santhera posts FY net loss of 27.9 mln sfr, sees first approval in H2  -  Feb 28, 2008
Forbes,For the year ahead, the group expects an opinion from the European Medicine Agency EMEA on its SNT-MC17 for the treatment of Friedreich's Ataxia disease in

Itches and scratches - living with disability  -  Mar 18, 2008
On Line opinion,I would like to draw attention to what disablement can mean to someone like me who suffers from Friedreich's Ataxia. I've been attacked by this progressive

Linda's Ataxia Ride  -  Mar 14, 2008
NewsChannel 9 WSYR,More specifically, Linda has Friedreich's ataxia. The neurological disease destroys the nerve cells, making it more difficult to walk and talk,

'Today Show' to film 'Gabe & Izzy' segment  -  Mar 11, 2008
The Flint Journal - MLive.com,In high school, children constantly bullied Ford - whose Friedreich's ataxia was beginning to cause her to limp. Izzy has helped Ford, who now uses a

Readers Corner 02/29/08  -  Feb 29, 2008
The Union of Grass Valley,Kyle explained the details of Friedreich's ataxia, a disease he developed while at Bear River High School, and the rationale behind his fundraising efforts.

Santhera Reports Financial Results And Significant Operational ...  -  Feb 28, 2008
ABN Newswire (press release),SNT-MC17 (INN: idebenone) in Friedreich's Ataxia (FRDA) The product's filing for marketing authorization is currently under review by regulatory authorities

Repligen Reports Third Quarter Fiscal Year 2008 Financial Results  -  Feb 7, 2008
MSN MoneyWe own the rights from The Scripps Research Institute to intellectual property covering compounds which may have utility in treating Friedreich's ataxia.

Quebec has a unique way of breaking the ice  -  Jan 29, 2008
The Age,...from the entry fee will go towards research at the Murdoch Childrens Research Institute into the neurological, degenerative disease Friedreich's ataxia.

What is ...perfection? What is ...dance?  -  Feb 11, 2008
Tonight,This is a privileged experience," says the totally fearless artist who suffers from Friedreich's ataxia. In the next experimental phase Remix newcomer,

Humiliation is almost worse than her disease  -  Dec 2, 2007
San Diego Union Tribune,Rose has a life-shortening disease called Friedreich's Ataxia that is slowly destroying her nervous system while leaving her mental capabilities intact.

White City man admits killing his ailing wife  -  Dec 5, 2007
Mail Tribune,Candy Burke suffered from Friedreich's ataxia, a disease that attacks the nervous system. Unable to walk without assistance and very weak,

A bullying victim's plea  -  Dec 1, 2007
Madison Courier,At 12 she was diagnosed with Friedreich's Ataxia, a progressive neuromuscular disease for which there is no cure. She has been wheelchair bound since the

Burke murder trial starts Tuesday  -  Dec 1, 2007
Mail Tribune,She suffered from Friedreich's ataxia, a disease that attacks the nervous system and rendered her unable to walk. Burke left his home in the 7900 block of

repligen reports second quarter fiscal year 2008 financial results  -  Nov 8, 2007
CNNMoney.com...we acquired the rights to intellectual property covering compounds which may have utility in treating friedreich's ataxia. we have synthesized and

santhera showcases potential and  -  Nov 11, 2007
Ad-Hoc-News (Pressemitteilung),...snt-mc17 for the treatmentof friedreich's ataxia is currently under review for marketauthorization in the eu and switzerland and soon in canada.

santhera showcases potential and progress of its clinical ...  -  Nov 11, 2007
ABN Newswire (press release),...snt-mc17 (inn: idebenone) in friedreich's ataxia (frda): the product's filing for marketing authorization is currently under review in the eu,

candidate with a profound vision of disabled people's place in society  -  Nov 16, 2007
The Age,...since the onset of friedreich's ataxia, a degenerative condition that attacks the nervous system, in his early 20s. last year he finished a doctorate in

santhera starts phase iib clinical  -  Nov 8, 2007
Ad-Hoc-News (Pressemitteilung),...for the treatment of friedreich's ataxia (frda), duchennemuscular dystrophy (dmd) and leber's hereditary optic neuropathy(lhon). another clinical

santhera starts phase iib clinical trial with jp-1730 in ...  -  Nov 8, 2007
ABN Newswire (press release),...snt-mc17 (inn: idebenone), for the treatment of friedreich's ataxia (frda), duchenne muscular dystrophy (dmd) and leber's hereditary optic neuropathy

Santhera says will file for Friedreich's Ataxia drug approval in ...  -  Sep 21, 2007
Forbes,ZURICH (Thomson Financial) - Santhera Pharmaceuticals Holdings said it will file for approval of its Friedreich's Ataxia (FRDA) drug idebenone in Canada,

People Thought I Was Just Drunk..  -  Oct 14, 2007
Glasgow Daily Record,Tracey, who is now 39, suffers from Friedreich's ataxia, a degenerative muscular condition where certain nerve cells in the body become damaged and

Swissmedic Accepts Santhera's Filing Of SNT-MC17 In Friedreich's ...  -  Oct 3, 2007
ABN Newswire (press release),Friedreich's Ataxia (FRDA) is a rare but severe genetic neuromuscular disorder that results in the degeneration of an individual's nerve and muscle tissue.

Dog, owner battle school bullies  -  Oct 18, 2007
The Grand Rapids Press - MLive.com,At 12, Ford was diagnosed with Friedreich's Ataxia, a progressive neuromuscular disease. She lost her coordination. Her speech became slurred.

Santhera starts Phase III trial for Friedreich's ataxia treatment  -  Oct 2, 2007
Pharmaceutical Business ReviewThe IONIA study will recruit a minimum of 51 ambulatory Friedreich's ataxia (FRDA) patients between the ages of 8 and 17 years and will be conducted at two

Santhera Announces Start of US  -  Sep 27, 2007
Ad-Hoc-News (Pressemitteilung),About Friedreich's Ataxia (FRDA)Friedreich's Ataxia (FRDA) is a rare but severe genetic neuromusculardisorder that results in the degeneration of an

Family’s pride in Brendon’s legacy  -  Sep 26, 2007
Newry Democrat,Brendon Murphy, from the Old Warrenpoint Road, was diagnosed with Friedreich's Ataxia, a condition that affects the nervous system and impairs the effective

For The Good Of The Child  -  Oct 16, 2007
Cleveland Free Times,A clear-minded mother, yes, and as independent as her limp noodle of a body would allow, but still the genetic recipient of Friedreich's Ataxia.

Swiss regulator accepts filing of Santhera's FRDA drug SNT-MC17  -  Oct 4, 2007
Forbes,ZURICH (Thomson Financial) - Santhera Pharmaceutical Holding AG said its application for market approval of Friedreich's Ataxia (FRDA) drug SNT-MC17 has

Santhera's FRDA treatment SNT-MC17 given FDA fast-track designation  -  Sep 27, 2007
CNNMoney.com...and Drug Administration (FDA) has granted a fast-track designation to its compound SNT-MC17 (idebenone) for the treatment of Friedreich's Ataxia (FRDA).

The other Brady cover boy  -  Sep 25, 2007
Boston Globe,...all of the dough to children's charities, including the Friedreich's Ataxia Research Alliance and the Epidermolysis Bullosa Medical Research Foundation.

Swiss shares close mixed in quiet trade, banks weigh after profit ...  -  Sep 21, 2007
CNNMoney.comSwiss pharmaceuticals group Santhera was 2 pct, or 2.00 sfr higher at 104.50 after announcing it plans to file for approval of its Friedreich's Ataxia drug

RPT Swiss shares edge up, helped into positive territory as Wall ...  -  Sep 21, 2007
Forbes,Swiss pharmaceuticals group Santhera was 2.4 pct, or 2.50 sfr, higher at 105 after announcing it plans to file for approval of its Friedreich's Ataxia drug

Bullying program held  -  Sep 28, 2007
Cameron County Endeavor,Gabe was constantly picked on in school because of her clumsiness and lack of coordination which, it turned out, was caused by Friedreich's ataxia.

Morning business file: Energy rebounds  -  Sep 21, 2007
Edmonton Journal,...combat neuromuscular disease, will seek approval from Canada's regulator to sell its treatment for a rare nerve disorder known as Friedreich's Ataxia.

Pharmaceuticals Holding AG Publication in LANCET Neurology ...  -  Sep 7, 2007
PharmaLive.com (press release),Angela Baker, Neal Jeffries, Kenneth H Fischbeck: Neurological effects of high-dose idebenone in patients with Friedreich's ataxia: a randomised,

Publication in LANCET Neurology  -  Sep 6, 2007
Ad-Hoc-News (Pressemitteilung),Angela Baker, Neal Jeffries, Kenneth HFischbeck: Neurological effects of high-dose idebenone in patientswith Friedreich's ataxia: a randomised,

EMEA Accepts Santhera's MAA Filing for SNT-MC17 in Friedreich's Ataxia  -  Aug 16, 2007
PharmaLive.com (press release),...for Marketing Authorization Application (MAA) for Santhera's lead compound SNT-MC17 (INN: idebenone) for the treatment of Friedreich's Ataxia (FRDA).

Pittsford sisters hoping for a cure for their rare disease  -  Aug 30, 2007
News 10NBC,The Ferrarone sisters have a rare genetic disease called Friedreich's Ataxia. By the time she was six, Sara was having trouble skipping and balancing.

European EMEA Acceptance of Marketing Authorization Application ...  -  Aug 15, 2007
PR Newswire UK (press release),Friedreich's Ataxia (FRDA) is a rare but severe genetic neuromuscular disorder that results in the degeneration of an individual's nerve and muscle tissue.

Bullying To Be Topic of Island School Program September 4  -  Aug 30, 2007
Mackinac Island Town Crier (subscription),The one-time dancer was diagnosed with Friedreich's ataxia, a neuromuscular disease, when she was 12. She was bullied, teased, and taunted by her classmates

Click to pick which painting to donate  -  Sep 3, 2007
Deseret News,He suffered a rare genetic condition called Friedreich's ataxia, which attacks muscles. That same year, Schmidty's heart gave out from the damage it had

Santhera, Takeda filing of FRDA drug SNT-MC17 accepted by European ...  -  Aug 16, 2007
Forbes,...has accepted its filing for Santhera's lead compound SNT-MC17 (Idebenone), making it the potentially first treatment for Friedreich's Ataxia (FRDA).

Santhera's 2007 Interim Results Reflect Increased Investment in ...  -  Aug 17, 2007
PharmaLive.com (press release),Application (MAA) for its lead product SNT-MC17 (INN: idebenone) in Friedreich's Ataxia (FRDA); - Further expansion of the clinical pipeline: In June,

Children left during bar trip, police say  -  Aug 15, 2007
Allentown Morning Call,The oldest child is afflicted with Friedreich's ataxia, a rare disease that causes nervous system damage. The boy needs leg braces to walk.

Reins of Life offers rides of a lifetime  -  10 Aug 2007
Dallas Morning News (subscription),Lee Witherspoon, one of the Reins of Life adult riders who has Friedreich's ataxia, said balancing on top of a moving horse is challenging.

Repligen Reports First Quarter Fiscal Year 2008 Financial Results  -  Aug 8, 2007
CNNMoney.comIn April, we acquired the rights to intellectual property covering compounds which may have utility in treating Friedreich's ataxia. Friedreich's ataxia is

Santhera, Takeda Extend Pact For Idebenone In DMD  -  Aug 7, 2007
Therapeutics Daily (subscription) (press release),...based on European rights to the same compound in another genetically inherited neuromuscular condition, Friedreich's ataxia (FRDA).

Faith & family  -  Jul 22, 2007
Fresno Bee (subscription),He typed "Friedreich's ataxia" into Internet search engines and felt his heart sink as he read about how the disease affects the nervous system,

Friedrich's Ataxia Fundraiser - July 28, 2007  -  Jul 19, 2007
NBC5.com,Why: To raise money for Friedreich's Ataxia (FA) research, to raise money for Alena and Alisa Wolfson, and to have fun! To learn more about FA, please visit

Santhera and Takeda Extend European Marketing Collaboration for ...  -  Aug 2, 2007
PipelineReview.com (press release),...terms which are identical to those in the earlier agreement covering SNT-MC17 in Friedreich's Ataxia (FRDA), signed by the two companies in July 2005.

Penwest Enters Into Collaboration Agreement With Edison ...  -  Jul 17, 2007
CNNMoney.com...and clinical initiatives from foundations including the Muscular Dystrophy Association, Friedreich's Ataxia Research Alliance, and Seek A Miracle.

Robinson receives award  -  Jul 23, 2007
SunHerald.com,In February 1996, Robinson received a diagnosis of Friedreich's ataxia (FA), a neurological disorder that causes damage to the peripheral nerves.

Ataxia's 'bright side' - Woman won't let disease slow her down  -  Jun 11, 2007
Checkbiotech.org (press release),By Suzie Stier-Waletski At age 6, Cris Ramaker of Rochester was diagnosed with Friedreich's Ataxia, a rare disease that mainly affects the nervous system

Cement Hill could get water soon  -  Jun 30, 2007
The Union of Grass Valley,The National Ataxia Foundation and the Friedreich's Ataxia Research Alliance announces that the $100000 Kyle Bryant Award will go to translational research

Community rallies around South Burlington resident  -  Jun 21, 2007
BurlingtonFreePress.com,By Julia Melloni When South Burlington resident Mary Gates, 25, was diagnosed in 2002 with Friedreich's ataxia, a rare form of muscular dystrophy,

Bike ride aids research  -  Jun 23, 2007
Sacramento Bee,Bryant, an environmental engineer from Sacramento, has Friedreich's ataxia, a rare and fatal disease that gradually attacks muscle coordination and speech.

Santhera Licenses Omigapil for Treatment of Rare Neuromuscular ...  -  Jul 3, 2007
PipelineReview.com (press release),...to be in place to support the launch and marketing of Santhera's lead compound SNT-MC17 (INN: idebenone) for Friedreich's Ataxia and other indications.

OUT & ABOUT  -  May 30, 2007
Savannah Morning News,Proceeds will benefit the Friedreich's Ataxia Research Alliance, a non-profit that supports research to find a treatment/cure for Friedreich's Ataxia,

'I don't know what tomorrow will bring'  -  May 25, 2007
Savannah Morning News,When Lindsay Ashman is not raising money and public awareness for Friedreich's Ataxia, she is spending quality time with her 4-year-old son Clay.

Miscellaneous Calendar: May 31-June 7  -  May 30, 2007
Savannah Morning News,Together they plan to raise money for the rare disease Friedreich's Ataxia, which Lindsay has, with a June 2nd morning walk in Forsyth Park and food and

The Mothers and Daughters of The Cake Eaters  -  May 11, 2007
Huffington Post,Living with Friedreich's Ataxia, my daughters Sam and Alex Bode take on each day of their lives with unbelievable courage and many challenges.

Disease — and bad guys — are no match for Yonkers boy  -  May 14, 2007
White Plains Journal News,In many ways, says his family, Donovan's wish made perfect sense: When he was diagnosed over four years ago with Friedreich's Ataxia - a degenerative

Intown Community Calendar  -  May 31, 2007
Savannah Morning News,The third annual fundraiser for Friedreich's Ataxia Research Alliance (FARA) will be June 2 and 3. Events include a walk at Forsyth Park beginning at 10 am

Young golfers hitting the links to fight cancer  -  May 26, 2007
Cincinnati Enquirer,Brandon is suffering from Friedreich's ataxia, a rare form of cancer that attacks the nervous system. His mother, Judy Emerson, said the fundraiser is being

Forecast through May 27  -  May 24, 2007
Gainesville Sun,WALK THE WALK: The Walk for Hope, a 2.8-mile fundraiser walk around the Santa Fe Community College campus to benefit Friedreich's Ataxia Research Alliance,

Barre Town students battle bullying  -  May 18, 2007
Barre Montpelier Times Argus,Ford, who at the age of 12 was diagnosed with Friedreich's ataxia, a rare neuromuscular disease, knows firsthand about bullying, as do some of the students

Nephew charged with aiding uncle's suicide  -  May 17, 2007
Globe and Mail,Last October, André Bergeron, 47, of Sherbrooke got three years of probation after the death of his wife, Marielle Houle, 44, who had Friedreich's ataxia.

Quebec case rekindles assisted suicide debate  -  May 16, 2007
Toronto Star,Houle suffered from Friedreich's ataxia, a degenerative and incurable disease. Bergeron boosted Houle's dose of morphine and tried to suffocate her with a

Melbourne Researchers Uncover Underlying Cause of Mitochondrial ...  -  May 7, 2007
SYS-CON Media,Friedreich's Ataxia, MERRF (Myoclonic Epilepsy and Ragged Red Fibres and MELAS (Myoclonic Epilepsy, Lactic Acidosis and Stroke-like Episodes) are examples

Moonlighting enzyme linked to Friedreich's ataxia  -  Apr 26, 2007
News-Medical.net,Friedreich's ataxia is an inherited neurodegenerative disease of children and teens and is considered an orphan disease by the National Institutes of Health

Repligen Licenses Potential Treatment for Friedreich's Ataxia from ...  -  Apr 13, 2007
Drug Newswire (press release),Friedreich's ataxia is an inherited neurodegenerative disease in which low levels of the protein frataxin result in progressive damage to the nervous system

Cross-country trip helps raise money for ataxia research  -  Mar 30, 2007
Knoxville News Sentinel (subscription),As a result, a grant of $100000 in his name will soon be awarded for research in fighting Friedreich's ataxia - an inherited disease that causes progressive

2800 miles to Memphis  -  Apr 7, 2007
The Union of Grass Valley,Kyle had drawn media attention all along the way and educated people at stops about Friedreich's ataxia. But he reached another milestone in Memphis that he

He rolled past pain to fight disease  -  Mar 30, 2007
Sacramento Bee,Kyle Bryant, 25, has Friedreich's ataxia, a disease that causes progressive lack of muscle control. He rode a three-wheeled bike to Memphis to raise

Repligen licenses new treatment  -  Apr 11, 2007
Boston Globe,According to Repligen, Friedreich's ataxia is an inherited neurodegenerative disease in which low levels of the protein frataxin result in progressive

Repligen signs license deal with Scripps Institute  -  Apr 11, 2007
Boston Globe,...license agreement from The Scripps Research Institute for compounds aimed at treating Friedreich's Ataxia, an inherited neurodegenerative disease.

Santhera Shareholders Approve all  -  Apr 23, 2007
Ad-Hoc-News (Pressemitteilung),SNT-MC17 (INN:idebenone) in the treatment of Friedreich's Ataxia (FRDA), DuchenneMuscular Dystrophy (DMD) and Leber's Hereditary Optic Neuropathy(LHON).

Letters: Health care, Hetch Hetchy, etc.  -  Apr 6, 2007
Sacramento Bee,Re "He rolled past pain to fight disease," March 30: My father died from complications of Friedreich's ataxia at age 63. He was diagnosed the year my

Fitness calendar  -  Apr 4, 2007
Orange County Register,..."Walk for Hope and a Cure" raises awareness for Friedreich's ataxia. Chelsea Lane, 13, from Orange, diagnosed with the rare degenerative disease at age four

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