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Main Line News in Brief  -  Mar 16, 2008
Philadelphia Inquirer,Lois B. Victor, the founder of Victor Centers for Jewish Genetic Diseases, who lost two daughters to the genetic disease familial dysautonomia,

‘Such varied creatures’  -  Feb 28, 2008
Jewish Herald-Voice,He was not diagnosed with FD (familial dysautonomia, a progressive and fatal neurological disorder), until he was 3. At the beginning, all we knew were his

Expo to focus on serving disabled  -  Feb 18, 2008
Arizona Republic,Learn about Jewish genetic diseases such as Tay-Sachs disease and familial dysautonomia from a physician, a genetics counselor and the mother of two girls

Getting Reel On Disabilities  -  Jan 23, 2008
New York Jewish Week,Ginsburg’s daughter, Samantha Myers, has Familial Dysautonomia, a rare Jewish genetic disease. At 10, Sam’s greatest desire was to go on television and talk

Tour de Foliage has grown from humble roots  -  Oct 2, 2007
The Journal News / Lohud.com,Over the last four years, they have raised almost $500000 for the Familial Dysautonomia Foundation through a bike tour that they were strongly cautioned not

Free genetic testing  -  Oct 14, 2007
WPTV,The test identifies bad copies of genes that can lead to Tay-Sachs, Canavan, Cystic Fibrosis, Familial Dysautonomia, Gaucher and Niemann-Pick.

Mission Impossible: A Routine Childhood  -  Oct 1, 2007
New York Times,Rebecca was born with familial dysautonomia, a rare genetic disorder causing dysfunction of the autonomic and sensory nervous systems.

Mustang Sally, Music for a Cure, Minnie Driver, Under Fire in Lebanon  -  Oct 11, 2007
The Jewish Journal of greater L.A,Familial dysautonomia is a neurological genetic disease carried by one in 27 descendants of Central or Eastern European Jews.

Retraining brain waves  -  Oct 8, 2007
Philadelphia Inquirer,In Elkins Park, Laura Bell credits neurofeedback with relieving flares of anxiety associated with familial dysautonomia, an inherited disorder that causes

University Events  -  Sep 26, 2007
Washington University Record,..."Rab GTPase Activation and the Mystery of Familial Dysautonomia." Ruth Collins, assoc. prof. of molecular medicine, Cornell U. McDonnell Medical Sciences

A disease 'most people have never heard of' hits home  -  Sep 1, 2007
White Plains Journal News,It would take until February 2006 before the New City woman learned that her son was born with familial dysautonomia, a rare genetic disease that plays

All About Dysautonomia - Caused By A Malfunction Of The Automatic ...  -  Jul 14, 2007
Medical News Today (press release),There is also a distinctive form of dysautonomia called Familial Dysautonomia (FD) that has been identified in individuals of Ashkenazi Jewish extraction.

NASA intern launches into heart research  -  Aug 6, 2007
Newsday,As an observant Jew, Solaimanzadeh has found it particularly moving to participate in research into familial dysautonomia, a genetic condition that

What It Feels Like, 2007  -  Jul 16, 2007
EsquireBy Buddy Kite (more from this author) Familial dysautonomia (FD) is a rare genetic disorder that affects the autonomic nervous system, which controls the

'I Just Want To Go Home'  -  May 31, 2007
Totally Jewish,...since an operation last year to fix her scoliosis, curvature of the spine, caused by Familial Dysautonomia, a genetic disease common in Ashkenazi Jews.

'I want to walk again'  -  Jun 1, 2007
Harrow Times,Natasha Jacobs, 15, is one of only 12 people in Britain to suffer from familial dysautonomia, a rare genetic condition which causes a dysfunction of the

[RV] I have a friend who says he can’t cry — are there medical ...  -  Apr 15, 2007
Scienceline,Aside from a numbing form of depression, the inability to cry may be caused by a rare affliction called Familial Dysautonomia (FD), or Riley-Day Syndrome.

Tay-Sachs testing urged for Ashkenazi couples  -  28 Feb 2007
Canadian Jewish News,Canavan disease, familial dysautonomia, Fanconi anemia group C, mucolipidosis type IV, Niemann Pick disease types A and B and Tay-Sachs.

School Notes  -  Dec 3, 2006
Philadelphia Inquirer,A concert organized by a local student to benefit Familial Dysautonomia, a genetic disease presented at birth, will be held from 3 to 5 pm today at ...

College students flock to screening for Jewish genetic diseases  -  Dec 5, 2006
Pittsburgh Post Gazette,The screening also focused on Bloom syndrome, cystic fibrosis, familial dysautonomia, Fanconi anemia type C, Gaucher disease type 1, and mucolipidosis IV. ...

Hillel, tested for  -  Dec 7, 2006
Pittsburgh Jewish Chronicle,4, at the Hillel Jewish University Center for Bloom syndrome, Canavan disease, Cystic Fibrosis, Familial Dysautonomia, Fanconi anemia, Gaucher disease ...

College students flock to screening for Jewish genetic diseases  -  Dec 5, 2006
Pittsburgh Post Gazette,The screening also focused on Bloom syndrome, cystic fibrosis, familial dysautonomia, Fanconi anemia type C, Gaucher disease type 1, and mucolipidosis IV. ...

Hillel, tested for  -  Dec 7, 2006
Pittsburgh Jewish Chronicle,4, at the Hillel Jewish University Center for Bloom syndrome, Canavan disease, Cystic Fibrosis, Familial Dysautonomia, Fanconi anemia, Gaucher disease ...

School Notes  -  Dec 3, 2006
Philadelphia Inquirer,A concert organized by a local student to benefit Familial Dysautonomia, a genetic disease presented at birth, will be held from 3 to 5 pm today at ...

Stars of David  -  Nov 21, 2006
Jewish Exponent,...the sands of time to focus on his sis, Kate, who, six years earlier, planned her Bat Mitzvah while fending off the ravages of Familial Dysautonomia, a Jewish ...



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