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Ellen Lenox Smith and Stuart Burns Smith  -  24 Mar 2008
Providence Journal,His wife of almost 35 years was diagnosed in 2004 with Ehlers Danlos syndrome, a rare genetic disorder. “She had surgery on her arms that we thought were

A piece of me  -  Mar 23, 2008
Albany Times Union,Kathaleen Hoffman's daughter, Kelly, was born with a connective tissue disorder called Ehlers-Danlos syndrome, which causes her bones to break easily.

Dr Thomas Stuttaford answers your questions on joint problems and ...  -  Mar 5, 2008
Times Online,One of these is known as Ehlers Danlos syndrome, the other as Marfan's syndrome. It shouldn't be forgotten that the degree of normal mobility in everybody's

LegDisorders.org launches a state of the art Clinical Compendium ...  -  Feb 26, 2008
PR Web (press release),Ehlers-Danlos Syndrome, Popliteal Entrapment and Compartment Syndrome The complete and up-to-date Compendium will be compiled through March 2008.

Peter H. Byers receives lifetime award in genetics from March of Dimes  -  Mar 13, 2008
EurekAlert (press release),Mutations in collagen genes can cause serious diseases such as forms of Ehlers-Danlos syndrome, characterized by fragile skin, unstable joints,

School board hears about teacher pay, more nurses, environment  -  Mar 11, 2008
BlueRidgeNow.com,Katelyn also has Ehlers Danlos Syndrome, which makes her skin easily tear, scar and bruise and slow to heal. "In her short six years, she has experienced

Group aims to help sufferers of rare disease  -  Feb 10, 2008
East Valley Tribune,It's called Ehlers-Danlos syndrome, or EDS, and in some forms is life-threatening but is often overlooked or undiagnosed. Rudisill is president of the

Fired worker sues college  -  Feb 6, 2008
Appeal-Democrat,...a congenital malformation of the brain, and Ehlers-Danlos Syndrome, a rare genetic disorder caused by defective collagen synthesis that affects joints.

Boy brings holiday cheer to hospital  -  Dec 24, 2007
Kingston Daily Freeman,He has Ehlers-Danlos Syndrome, a hereditary disorder affecting connective tissues, and he suffers from acid reflux and seizures. He and his family have been

Perioperative Care of the Patient With Osteogenesis Imperfecta  -  Dec 14, 2007
Ortho SuperSite,As with other disorders affecting the connective tissue (Ehlers-Danlos syndrome, Marfan’s syndrome, Hurler’s syndrome, and pseudoxanthoma elasticum),

Artist's creations offer therapeutic respite  -  Dec 8, 2007
Las Cruces Sun-News,It's a genetic disorder called Ehlers-Danlos syndrome and it causes my joints to dislocate. I've had a lot of pain and a lot of operations," said Mack, 49,

Defying the Challenges of Being Physically Challenged  -  Nov 30, 2007
Hicksville Illustrated News,It wasn't until 1995, when Burpee was 30 years old, that doctors diagnosed her with Ehlers Danlos Syndrome (EDS), a very rare and terminal genetic disease

Think of Health Insurance As a Homeowners Policy  -  Nov 26, 2007
Wall Street JournalPerhaps that is why I have the time to spend with patients and have diagnosed four cases of Ehlers-Danlos syndrome in the past year alone.

health care reform proposals do not address problems for insured  -  Nov 16, 2007
Kaiser network.org,...a former chef who has a rare genetic disorder called ehlers-danlos syndrome, in which the connective tissue in the body disintegrates over time.

family in need to get an assist  -  Nov 20, 2007
Newsdurhamregion.com,...and sunday to help out the woman and her children. mrs. pratt and her two sons have ehlers-danlos syndrome, a disease which affects the body's collagen,

cutis laxa  -  Nov 5, 2007
Jackson Clarion Ledger,...pulmonary emphysema may precipitate corpulmonale. diagnosis is clinical. typical cutis laxa can be distinguished from ehlers-danlos syndrome. there is

Two terminally ill Montanans file right-to-die lawsuit  -  19 Oct 2007
The Bozeman Daily Chronicle,Steven Stoelb, 53, of Livingston, a former logger and technician with Ehlers-Danlos syndrome, which attacks veins, arteries and internal organs,

Lady Lake resident needs surgery to relieve the effects of rare ...  -  Oct 9, 2007
Villages Daily Sun,Burd’s situation is further complicated by Ehlers-Danlos Syndrome, an inherited condition that causes loose joints and weak tissues.

The guilt of a mum  -  Oct 3, 2007
Hartlepool Today,But it wasn't until her son began to suffer similar problems and was diagnosed with the rare Ehlers-Danlos Syndrome that she was given the news that she had

Table talk  -  Oct 16, 2007
MSU State News,Renkema, an animal science junior, was diagnosed with the connective tissue disorder Ehlers-Danlos syndrome in December of 2006 and fibromyalgia last May.

Mondovi woman leads fight for medical marijuana  -  Oct 2, 2007
smokedot.orgRickert said, she has been suffering the debilitating effects of the genetic disorder Ehlers-Danlos syndrome and reflex sympathetic dystrophy.

SLASHED BY PARTY GUESTS  -  Sep 23, 2007
Electric New Paper,His daughter, 4, suffers from the Ehlers Danlos Syndrome, a condition which causes her to bruise easily. But things started going downhill at the party and

Plano teen finds purpose in illness that forced her to quit sport  -  Sep 2, 2007
Dallas Morning News (subscription),Now in college, Nikki is continuing efforts to raise awareness of Ehlers-Danlos syndrome. At age 18, she stood a little more than 6-foot-1.

Award for nursery success  -  Sep 6, 2007
Hartlepool Today,Sharon, 41, bought the business after being diagnosed with Ehlers-Danlos syndrome in 2004 and had to leave Cleveland Police. She explained that the syndrome

Bruschi is stroke survivor’s inspiration  -  Aug 31, 2007
Braintree Forum,She suffers from Ehlers-Danlos syndrome, a disease that causes all of the connective tissues in the body to become weak and fragile.

Darwin evolves through pain  -  Aug 3, 2007
McKinney Courier Gazette,At the age of 16, Darwin was diagnosed with Ehlers-Danlos syndrome, which is a defect in the connective tissue throughout the entire body.

Often out of joint, but totally adjusted READER ESSAY MY HEALTH  -  Jul 14, 2007
The Free Lance-Star,Two years ago, an internist at The Johns Hopkins Hospital diagnosed me with the hypermobile type of Ehlers-Danlos syndrome, a connective tissue disorder.

Screening for fragile skin  -  Jul 31, 2007
RxPG NEWS,Similar conditions occur in cattle, cats and humans (Ehlers- Danlos Syndrome type VIIC). After Brendon O’Rourke and Dr Berg confirmed and defined the

Unintended overdose deaths rise sharply  -  Jun 15, 2007
The Coloradoan,Chana Miyagi had been taking OxyContin for at least 18 months before her death, her father said, to manage pain caused by Ehlers-Danlos Syndrome - a disease

On the Sidelines - Supporting a good cause  -  May 18, 2007
Lahontan Valley News,Autumn is suffering from a rare genetic disease known as Ehlers-Danlos syndrome, which causes a defect in the connective tissue that provides support to the

[an error occurred while processing this directive] Murder not only reason for autopsy  -  Feb 11, 2007
Fort Wayne Journal Gazette,He suspected a rare connective tissue disease called Ehlers-Danlos syndrome that not only makes joints floppy, it also weakens blood vessels.

Three family members cope with EDS, a genetic disorder  -  Feb 12, 2007
San Bernardino Sun,The others are those who, like the Sauls family in Rancho Cucamonga, suffer from a genetic disorder known as Ehlers-Danlos Syndrome.

'We need a new college'  -  Feb 2, 2007
The Daily Astorian,Diagnosed as an infant with scoliosis and Ehlers-Danlos Syndrome, a connective-tissue disease, Hoagland-McGee uses a wheelchair. But on a recent tour of the

For some, it's a comfort to find a name, if not a cure  -  Jan 19, 2007
Virginian Pilot,Ehlers-Danlos syndrome is a genetic disorder that affects collagen, a protein found in connective tissue. Symptoms can vary depending on the type of

For some, it's a comfort to find a name, if not a cure  -  Jan 18, 2007
Virginian Pilot,Lefcoe has Ehlers-Danlos syndrome, a genetic disorder of the connective tissues, often marked by loose joints and unusually stretchy, fragile skin.

Letter: Plea from the heart  -  Jan 12, 2007
The Daily Astorian,I am a senior at Astoria High School, and use an electric wheelchair for long distances because of scoliosis and Ehlers-Danlos syndrome.

You were wondering  -  Dec 19, 2006
The News Journal,But there are a few conditions -- including Marfan's syndrome and Ehlers-Danlos syndrome -- that are associated with hypermobility, and both can cause serious ...

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