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ABC's "20/20: Medical Mysteries" Airs on March 14  -  Mar 14, 2008
All American Patriots (press release),To a thief it might sound like a dream-but it's reality for people living with a rare form of what's called Ectodermal Dysplasia. Deborah Roberts reports on

Cancer study yields bowel treatment  -  Mar 11, 2008
Belleville News Democrat,Scientists and doctors from 23 countries gathered in Charleston, SC, last weekend for the International Conference on Ectodermal Dysplasia Classification.

Giving a little bit of themselves  -  Mar 4, 2008
Milton Daily Standard,Further research has found that out of every 10000 births, seven will result in ectodermal dysplasia, a condition that can also result in permanent hair

Investigation into Milford student's death ongoing  -  Feb 29, 2008
Community Press,Antrim also suffered from ectodermal dysplasia, a genetic defect that results in the failure of skin, sweat glands, hair, teeth and nails to develop

Living with ectodermal dysplasia  -  Feb 11, 2008
Ventura County Star,Vanhorenbeeck took Lauren, now 5, to see a dentist, where X-rays revealed classic signs of ectodermal dysplasia. The rare genetic syndrome is actually a

Baby Giovanni has setback  -  29 Dec 2007
The Union Leader,..."He's been diagnosed with ectodermal dysplasia,'' said his father, Michael Guglielmo, who has been leading a bone marrow donor drive that has seen more than

Love At First Sight Saves Child  -  Dec 20, 2007
KSDK,The children, Samantha and Drew were born with ectodermal dysplasia, a genetic disorder that affects their teeth, hair, and ability to sweat.

billboards used to add marrow donors  -  Nov 26, 2007
The Union Leader,...that he has ectodermal dysplasia and is unable to control his core body temperature, which would mean he would have to live in a climate-controlled rooms.

pediatric dry eye may indicate systemic disease  -  Oct 30, 2007
OSN SuperSite (subscription),...two children had anidrotic ectodermal dysplasia, one had epidermolysis bullosa, one had ectrodactyly ectodermal dysplasia-clefting syndrome,

Periodontal work improves lives of area women  -  Oct 15, 2007
Kankakee Daily Journal,But Gregoire's teeth were terribly disfigured due to a condition called ectodermal dysplasia. This hereditary condition is caused by a single abnormal gene

Health Alert: Artificial teeth  -  Sep 26, 2007
WIS,She was born with a birth defect called Ectodermal Dysplasia. She had very few teeth and very little bone to support them. "They would tell me that,

A talk with Michael Berryman  -  Oct 11, 2007
GoErie.com,The tall, imposing Berryman was born with a rare genetic condition called hypohidrotic ectodermal dysplasia, which inhibits the growth of hair, nails,

New Artificial Teeth  -  Aug 28, 2007
WKRG-TV,She was born with a birth defect called ectodermal dysplasia. She had very few teeth and very little bone to support them. Darla Keenum says it's been

A new set of teeth  -  Jul 14, 2007
Hindu,However, in certain conditions such as ectodermal dysplasia, implants can be given during childhood. In some patients, the upper jaw bone is not adequate to

Full Text  -  Aug 2, 2007
Science Magazine (subscription)For example, dyskeratosis congenita (21) and anhidrotic ectodermal dysplasia with immunodeficiency (32) are associated with multiple infections,

Preschooler donates hair to others  -  Jun 22, 2007
Emporia Gazette (subscription),...of 18 who suffer from hair loss caused by medical conditions, such as cancer, serious burns, alopecia areata, ectodermal dysplasia and other diseases.

4-yr-old struggles against sweat  -  May 23, 2007
CNN-IBN,It's a rare disease called Anhidrotic Ectodermal Dysplasia (AED) where the sweat glands are deficient or sometimes just not there.

Human Skin And Hair Disorder May Be Aided Through Sheep Gene Research  -  Apr 10, 2007
Science Daily (press release)Similarly it could lead to benefits for human hair conditions such as ectodermal dysplasia. (Credit: Photo courtesy of SARDI)

Wool could be key to human hair and skin disorder  -  Apr 3, 2007
FarmNews.co.nz,Two of the genes measured in this way are known to be important in the human genetic condition, ectodermal dysplasia. People with this genetic condition are

Kellys thrive against odds  -  Apr 15, 2007
The Northern Star,Tarja’s sons, Sebastian, Matthew and Nathaniel, have a rare disease called Ectodermal Dysplasia, a hereditary condition resulting in the boys having no

Outpouring of love  -  Apr 23, 2007
New Albany Tribune,Shortly after he was born, JT was diagnosed with Ectodermal Dysplasia with Immunodeficiences (NEMO), a rare immune disease.

Future is bright for the kids from the Kelly gang  -  Apr 11, 2007
The Northern Star,Their sister Siobhan did not develop the condition, called Hypohidrotic Ectodermal Dysplasia (HED), because it is generally prone in males.

TopoTarget of Denmark buys Swiss biotech firm Apoxis for 14.5 ...  -  Apr 12, 2007
Pharma Times (subscription),...a therapeutic human recombinant protein in late pre-clinical development for the treatment of X-linked hypohidrotic ectodermal dysplasia, a rare human

Group raises awareness of inherited disorder  -  Feb 24, 2007
Milwaukee Journal Sentinel (subscription),Mission: The foundation seeks to enrich the lives of individuals affected by all forms of the ectodermal dysplasia syndromes.

The Only One Of His Kind  -  Feb 20, 2007
Mmegi,The 20-year-old out of school youth has a rare condition of Ectodermal Dysplasia (ED) syndrome. But he has a dream. Raising awareness and building a

Rare disease doesn't affect boy's spirit  -  Feb 8, 2007
Oxford Tribune,Oxford's three year-old Aiden Galdes is affected by a special form of ED called Hypohidrotic Ectodermal Dysplasia (HED), which prevents his sweat glands

Fifth-grader featured on ABC’s ‘Primetime’  -  Jan 22, 2007
Eastern Arizona Courier,The media story has developed national and local attention just in time for Ectodermal Dysplasia Awareness Month, which will be observed in February by the

Medical Mystery: No Fingerprints  -  Jan 9, 2007
ABC NewsDPR, as well as approximately a hundred other genetic disorders that fall under the umbrella of ectodermal dysplasia syndromes, or ED'S.

Readers Care: Northwest's Child a safety net for disabled youth ...  -  Dec 17, 2006
Seattle Post IntelligencerSeattle. Max was born 2 1/2 months premature, with brain-wiring difficulties and a condition called ectodermal dysplasia. Although ...

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