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Games joy for brave kidney op girl Alice  -  24 Mar 2008
Hartlepool Today,Vicky died three years ago aged 12 from Blackfan Diamond syndrome, a rare blood disorder and regularly featured in the Mail. Sue and the children held a

Charity Pageant  -  Mar 12, 2008
Hardin County Index,Angela, 12, a victim of a rare genetic disorder called Scwachman-Diamond Syndrome, which affects many organs of the body. Angela has already had both a bone

Sick boy's family raises £30000  -  Feb 6, 2008
Spalding Guardian,Connor Wright (11), of Crowland, has Shwachman-Diamond Syndrome and is undergoing an operation in a couple of weeks' time which will help doctors understand

Santa's surprise for little Connor on Christmas Eve  -  Dec 27, 2007
Peterborough Evening Telegraph,Connor Wright (11), was born with Shwachman-Diamond Syndrome, a rare illness which affects the youngster’s bone marrow. The disease means a simple bout of

New Year’s Day water-ski jaunt to benefit children with life ...  -  Dec 25, 2007
Kansas City Star,...a Reason at noon Tuesday at Lake Winnebago to help a family whose three children have a chronic, life-threatening disease, Shwachman-Diamond syndrome.

Knockout fun raises £6000  -  Sep 24, 2007
Spalding Guardian,Connor Wright (11) suffers from Shwachman-Diamond syndrome, a disease that affects his bone marrow leaving him with a dangerously low white blood cell count

Mystery clings to boy stuck in slow growth pattern  -  Sep 23, 2007
Seattle Post IntelligencerAt this point, a rare genetic disorder called Shwachman-Diamond Syndrome tops the suspect list, but no one has been able to say for sure.

Knockout fund-raiser for brave Connor, 11  -  Sep 6, 2007
Peterborough Evening Telegraph,Connor Wright was diagnosed with the rare Shwachman-Diamond Syndrome in 2005, and since then has been on an intensive course of medication and has made

You could save a life  -  Aug 21, 2007
LaSalle News Tribune,Black will donate stem cells to a 9-year-old with Shwachman-Diamond syndrome. The gift of life. A term sometimes loosely applied to many facets of our lives

Let's Go! Sept. 6 and beyond  -  Sep 6, 2007
Beaumont Enterprise,Brown has Swachman-Diamond Syndrome, a rare genetic disease that requires many whole blood and platelet transfusions. To donate to the Angela Brown Medical

A billion to one bond..  -  Aug 22, 2007
Mirror.co.uk,In billion-to-one odds Charlotte, five, and four-year-old Kimberley are the first cousins in Britain to be diagnosed with Shwachman Diamond Syndrome (SDS).

Siblings struggle with rare disorder  -  Dec 26, 2006
Kansas City Star,Prasad thinks the children have a variation of Schwachman-Diamond Syndrome, a disease that involves the pancreas, bone marrow and skeleton, Chris Cox said.

Siblings struggle with rare disorder  -  Dec 26, 2006
Kansas City Star,Prasad thinks the children have a variation of Schwachman-Diamond Syndrome, a disease that involves the pancreas, bone marrow and skeleton, Chris Cox said.

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