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In the Zone: 'Everybody plays' the motto at Riverview School  -  Mar 6, 2008
Cape Cod Times,Their son, Logan, 18, was diagnosed with Cornelia de Lange syndrome, a genetic disorder, when he was 3 months old. He's been at Riverview for three years.

Plenty of corned beef and cabbage dinners this March  -  Feb 29, 2008
Stratford Bard,Seatings will be at 5 and 6:30 pm The event will raise funds for the Cornelia de Lange Syndrome Foundation (CdLS) as it assists victims of the disorder that

'Molecular Glue' Cohesin Acts As Regulator Of Gene Expression  -  Jan 31, 2008
Science Daily (press release)One of the more well-known disorders of this kind is called Cornelia de Lange Syndrome. Affected persons suffer from numerous anomalies and malformations.

Life outside Rosewood's walls  -  Jan 22, 2008
Baltimore Sun,Reflecting last week on her decision, Matheson said the ensuing years have been good to Matthew, who was born with Cornelia de Lange syndrome.

Loss of ATRX leads to chromosome cohesion and congression defects  -  Jan 28, 2008
Journal of Cell Biology (subscription)Abbreviations used in this paper: ANOVA, analysis of variance; ATRX, thalassemia/mental retardation X linked; CdLS, Cornelia de Lange syndrome; CENP,

Sharon's show criticised by mum of disabled boy  -  Dec 9, 2007
Digital Spy,Twelve-year-old Dean Keating suffers from Cornelia De Lange Syndrome, a genetic disease which has left him deaf and unable to talk.

A journey of hope  -  Dec 19, 2007
Demopolis Times,Also, two-year-old Parker suffers from Cornelia de Lange syndrome, a condition he had a birth, which causes him to have developmental delays in growth,

Church offers respite for caregivers  -  Dec 1, 2007
New River Valley Current,Gersuk's older brother Stephen has Cornelia de Lange syndrome and attended a program similar to Friday Night Friends when they were growing up.

Life still same for radio plea mum, one year later  -  Dec 5, 2007
Irish Independent,Keith Finneran (20) suffers from the rare Cornelia-de-Lange syndrome, and requires 24-hour home care. His mother Catherine, who appealed to Mr Cowen to help

parents push for worker pact settlement  -  Nov 21, 2007
Belleville News Democrat,...thompson's 5-year-old son, elijah, has cornelia de lange syndrome, a congenital disease which causes him to operate with the mental capacity of a

the world according to carl  -  Nov 7, 2007
Pioneer Press,...his verbal iq is low, attributed to something called cornelia de lange syndrome. carl does not drive a car, but he works every day. carl is not married,

The Winchester Star  -  Oct 11, 2007
Winchester Star,It wasn’t until Brendan was 16 months old that a doctor diagnosed him with Cornelia de Lange Syndrome. "He was diagnosed by physical features," she said.

Area woman seeks to raise funds to fight syndrome  -  Sep 30, 2007
The Saratogian,BALLSTON SPA - A local woman and her team are going to head to Chicago next week to raise money for children with Cornelia de Lange Syndrome (CdLS).

Baltimore County Datebook  -  Sep 8, 2007
Baltimore Sun,Proceeds benefit the Maryland School for the Blind, the Parkville High School music department and the Cornelia de Lange Syndrome Foundation. 410-668-5251.

Three-year battle for help almost over  -  Sep 5, 2007
Norwich Evening News,Now, more than three years later, the 32-year-old mum is finally close to being told her daughter has the rare genetic condition Cornelia De Lange Syndrome.

September 6th, 2007  -  Sep 6, 2007
Times-Herald,Some proceeds of the fair benefit The Cornelia de Lange Syndrome Foundation and JD Carpets Inc is joining the fundraising efforts.

School teaches students to swim by knowing their different strokes  -  Aug 15, 2007
CNN InternationalMaya has Cornelia de Lange Syndrome, which causes mental and physical impairment, including stunted growth. Maya is 10 pounds lighter than her 2-year-old

Former food service employee permitted to work for D205  -  Aug 28, 2007
Chicago Suburban News,...his 13-year-old son, William, who attends District 205 and suffers from Cornelia de Lange syndrome, a developmental disorder similar to Down syndrome.

CdLS: Foundation reaching out to people, families affected by rare ...  -  Jul 29, 2007
Deseret News,She also looks like the little girl featured on the brochure for the Cornelia de Lange Syndrome Foundation. Alyssa Turner, 13, who has Cornelia de Lange

Hiker for a cause stops in Salisbury  -  Jul 20, 2007
Checkbiotech.org (press release),Shortly before he set out he was introduced to the child of an acquaintance who suffers from Cornelia de Lange Syndrome (CdLS), a rare condition that causes

Caught in between  -  Jul 20, 2007
Chicago Suburban News,His 13-year-old son, William, was born with Cornelia de Lange syndrome, a developmental disorder similar to Down syndrome. When the district parted with

7:28 pm: Lapel Village Fair to raise money for downtown improvements  -  Jul 11, 2007
Anderson Herald Bulletin,...“There will also be a run/walk on Saturday which begins at 7:30 am at Woodward Park,� said Hinkle, adding it’sa fundraiser for Cornelia de Lange syndrome

New minister Devins gets rapturous welcome home  -  Jun 26, 2007
Sligo Weekender,Keith suffers from Cornelia de-Lange syndrome, a rare ill-ness that requires 24-hour home based care. For years, Catherine has fought for care for her son

Soap box derby race gives children with disabilities a chance to ...  -  Jun 3, 2007
Akron Beacon Journal,Daniel has Cornelia de Lange syndrome, a rare congenital condition whose symptoms include slow growth, small stature, excessive body hair and other problems

Full speed ahead  -  May 9, 2007
Waterloo Cedar Falls Courier,Troy had Cornelia de Lange Syndrome. The syndrome was discovered in 1933 by Cornelia de Lange, but it is still not widely known about or understood in most

Online service launched for antenatal screening tests  -  May 23, 2007
E-Health Insider,...neural tube defects such as spina bifida, abdominal wall defects such as exomphalos and Cornelia de Lange syndrome in affected families.

Disabled man's agonising wait for dentist  -  May 31, 2007
Lancaster Today,Twenty-year-old Ian Donald from Beaumont has Cornelius-de-lange syndrome – a gene defect that affects 1 in 30000 people. This means not only does he suffer

Hospice: Dying alive  -  May 27, 2007
Pittsburgh Tribune-Review,Elizabeth "Lizzy" Frederick was a 13-year-old with Cornelia de Lange Syndrome, a genetic disorder that causes gastrointestinal problems, mental retardation,

United Way honors local leaders  -  May 10, 2007
Cincinnati Post,She has a rare condition called Cornelia de Lange syndrome. When she was born, they told us Morgan probably would never sit up, walk, talk, make eye contact

Mary T. Zakrajsek  -  May 6, 2007
News-Herald.com,In lieu of flowers the family suggests contributions to the Poor Clare Nuns, 3501 Rocky River Dr., Cleveland 44111 or to the Cornelia de Lange Syndrome

Hampton child's rare illness rallied family, community  -  Apr 14, 2007
Pittsburgh Tribune-Review,Danette and Randy Frederick never considered their daughter Lizzy's 13-year battle with Cornelia de Lange Syndrome to be a burden.

Annual race to raise money, awareness of Cornelia de Lange syndrome  -  Jan 16, 2007
News-Daily.com,But Maya Pomfret has Cornelia de Lange Syndrome. It has caused her to have no hearing in her left ear. She had kidney problems for the first two years of

Help boost for ill boy  -  Jan 19, 2007
Malvern Gazette,Rachel and Nick Davies' eleven-month-old son Edward has rare genetic disorder, Cornelia de Lange Syndrome (CdLS), which leaves him in need of 24-hour care.

Parents of sick child to raise funds and awareness  -  Jan 9, 2007
Malvern Gazette,Eleven month old Edward was born with Cornelia de Lange Syndrome (CdLS), and is among only 400 cases in the United Kingdom. The disorder, caused by a random

Lad must live without giggling  -  Jan 14, 2007
The Sun,Edward suffers from rare genetic disease Cornelia de Lange syndrome that affects just 400 people in the UK. Valves in his lungs do not work,

Not your average fourth-grader  -  Dec 29, 2006
Fremont Tribune,Nebraskaland Days celebration that has been chosen to grace the most recent informational folders of the National Cornelia de Lange Syndrome Foundation.

Your Health: Gene genie  -  Jan 6, 2007
New Straits Times,Baby C was diagnosed with a rare genetic disorder known as Cornelia de Lange Syndrome. THE Human Genome Centre, besides conducting research locally,

'We're blessed'  -  Dec 25, 2006
Elmira Star-Gazette,Alyssa, their first, was born with Cornelia de Lange syndrome, a genetic condition that causes emotional and physical disabilities, one of which required

Arroyo Grande coach says goodbye; End of an Eagles era  -  Dec 31, 2006
San Luis Obispo Tribune,And Huss’ youngest son, Matthew, developmentally disabled with Cornelia de Lange syndrome, became as much of a fixture on the football team as his dad.

Living with the unknown  -  Dec 1, 2006
Harrow Times,Anita Shah, 39, of Kingshill Avenue, had no idea what to expect when she was told her newborn baby had Cornelia de Lange Syndrome (CdLS).

'We're blessed'  -  Dec 25, 2006
Elmira Star-Gazette,Alyssa, their first, was born with Cornelia de Lange syndrome, a genetic condition that causes emotional and physical disabilities, one of which required

When Love is Enough: Mother of Disabled Child Tells her Story  -  Dec 12, 2006
Government of Jamaica, Jamaica Information Service,Bencian Campbell, who was born on June 11, 1988 with Cornelia De Lange Syndrome, a genetic disorder that affects physical and mental development.

Heart, soul and dance  -  Dec 16, 2006
commercialappeal.com (subscription),Cindy Myers, mother of 11-year-old Gabrielle, who has the rare genetic disorder Cornelia de Lange Syndrome, says it is difficult to find activities for

This boy is not your average kid  -  Dec 9, 2006
North Platte Telegraph,Nebraskaland Days celebration that has been chosen to grace the most recent informational folders of the National Cornelia de Lange Syndrome Foundation.

Career Ladder  -  Dec 11, 2006
Hartford Courant,Deirdre Summa has joined the staff of the Cornelia de Lange Syndrome Foundation, Avon, as a family service coordinator. Patrice Tadel was named patient care

When Love is Enough: Mother of Disabled Child Tells her Story  -  13 Dec 2006
Government of Jamaica, Jamaica Information Service,...from Lincoln in Manchester, is a mother of two daughters and a son, Bencian Campbell, who was born on June 11, 1988 with Cornelia De Lange Syndrome, a genetic ...

This boy is not your average kid  -  Dec 9, 2006
North Platte Telegraph,...at a Nebraskaland Days celebration that has been chosen to grace the most recent informational folders of the National Cornelia de Lange Syndrome Foundation. ...

Living with the unknown  -  Dec 1, 2006
Harrow Times,Anita Shah, 39, of Kingshill Avenue, had no idea what to expect when she was told her newborn baby had Cornelia de Lange Syndrome (CdLS). ...

Career Ladder  -  Dec 11, 2006
Hartford Courant,Hospital. Deirdre Summa has joined the staff of the Cornelia de Lange Syndrome Foundation, Avon, as a family service coordinator. ...



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