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Families granted a wish upon a star  -  Mar 15, 2008
Carlisle Sentinel,The trip will be a little bittersweet for Coover, whose daughter Amber died eight years ago, also from Canavan disease, and who had the same wish granted

Dinner to benefit research into disease  -  Oct 10, 2007
Chicago Daily Herald,All donations to Canavan Research Illinois are tax deductible. To learn more about Canavan Disease, go to the Web site at www.canavanresearch.org.

Genetic disease is concern for some young couples  -  Oct 12, 2007
TCPalm,It identifies bad copies of genes that can lead to Tay-Sachs, Canavan disease, cystic fibrosis, familial dysautonomia, Gaucher and Niemann-Pick disorder.

The conundrum of genetic testing  -  Sep 19, 2007
Sun-Sentinel.com,Other diseases that Ashkenazi Jews are frequently screened for include Canavan disease and Niemann-Pick disease, which lead to death in early childhood,

Village marks year of being smoke free  -  Oct 3, 2007
Chicago Daily Herald,Buffalo Grove's Ilyce Randell and her mom, Peggy Shapiro-Nyeholt, started the foundation for Randell's son, Max, who has Canavan disease.

The Tragedy of the Anticommons  -  Oct 2, 2007
Reason Online,We can all name them by heart: BRCA1 and 2, Myriad Genetics; hemochromatosis; Canavan's disease. It's the same ones. Are there any new ones?

Taylorsville nestles the tastes of Texas  -  Aug 16, 2007
Salt Lake Tribune,In the past, such donations have included providing food to help raise money for Canavan Disease research, aiding Miss Utah and helping with student-reading

Ashtyn's voice rises above the crowd  -  Jul 18, 2007
Lake Country Reporter,Ashtyn Fellenz has Canavan disease, a rare and incurable neurological disorder that causes progressive damage to nerve cells in the brain.

Quick, Lassie, Go Help Timmy  -  Aug 1, 2007
TheStranger.com,A Disabled Son Teaches His Mother About Courage, Hope, and the Joy of Living Each Day to the Fullest is the story of a boy born with Canavan disease.

Julie Bowen hosts Jacob's Cure benefit luncheon  -  Jun 14, 2007
Celebrity Baby Blog,Jacob, the non-profit organization raises awareness of and research funding for the fatal genetic neurological disorder Canavan Disease.

Devoted mom lands on TV  -  May 9, 2007
Chicago Daily Herald,As part of the contest, Randell had a room in her home renovated to accommodate 9-year-old Max, who has Canavan disease, a degenerative brain disorder with

Tay-Sachs testing urged for Ashkenazi couples  -  28 Feb 2007
Canadian Jewish News,...which checks whether they are carriers for Bloom syndrome, Canavan disease, familial dysautonomia, Fanconi anemia group C, mucolipidosis type IV,

Magical smile of a boy with a rare and fatal genetic disease ...  -  Feb 27, 2007
Celebrity Baby Blog,BabyDish, whose BabyBeReady Diaper Bag Survival Kit has joined the fight to find a cure for Canavan Disease, a rare genetic disorder that has no known cure

Michael Crichton: Gene patents aren't benign and never will be  -  Feb 14, 2007
Minneapolis Star Tribune (subscription),For example, Canavan disease is an inherited disorder that affects children starting at 3 months; they cannot crawl or walk, they suffer seizures and

Politicians embrace stem cell research  -  Jan 16, 2007
Bradenton Herald,Brenda Breedon said she hopes discoveries through the use of stem cells would find a cure for the Canavan disease afflicting her son.

Little girl, big plans | A rare disease, a cause for hope  -  Dec 4, 2006
The State,Their desperate pursuit of an experimental therapy for Lana’s Canavan disease led them to a researcher in the Northeast who was trying gene therapy for

MORE ABOUT LANA’S DISEASE  -  Dec 3, 2006
The State,Canavan disease causes the brain to deteriorate, usually progressing rapidly to cause mental retardation, loss of motor skills, floppiness or stiffness in

A chance For Lana  -  Dec 2, 2006
The State,Myelin, a protective substance surrounding nerve cells in the brain, cannot form properly in children with Lana's condition, Canavan disease.

Hillel, tested for  -  Dec 7, 2006
Pittsburgh Jewish Chronicle,4, at the Hillel Jewish University Center for Bloom syndrome, Canavan disease, Cystic Fibrosis, Familial Dysautonomia, Fanconi anemia, Gaucher disease,

College students flock to screening for Jewish genetic diseases  -  Dec 5, 2006
Pittsburgh Post Gazette,Several of the disorders, including Tay-Sachs disease, Niemann-Pick disease type A, and Canavan disease, can be fatal within the early years of life.

MORE ABOUT LANA’S DISEASE  -  Dec 3, 2006
The State,...• Canavan disease causes ... It is estimated only about 200 patients have been diagnosed with Canavan disease in the United States and about 1,500 worldwide. ...

Little girl, big plans | A rare disease, a cause for hope  -  Dec 4, 2006
The State,Their desperate pursuit of an experimental therapy for Lana’s Canavan disease led them to a researcher in the Northeast who was trying gene therapy for ...

A chance For Lana  -  Dec 2, 2006
The State,By LINDA H. LAMB. Michelle Swancey holds her daughter Lana, who has Canavan disease. Lana’s father Gary, at right, and brother Coty, 7, look on. ...

College students flock to screening for Jewish genetic diseases  -  Dec 5, 2006
Pittsburgh Post Gazette,Several of the disorders, including Tay-Sachs disease, Niemann-Pick disease type A, and Canavan disease, can be fatal within the early years of life. ...

Hillel, tested for  -  Dec 7, 2006
Pittsburgh Jewish Chronicle,4, at the Hillel Jewish University Center for Bloom syndrome, Canavan disease, Cystic Fibrosis, Familial Dysautonomia, Fanconi anemia, Gaucher disease ...

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